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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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July 12, 2025
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A MyMSTeam Member

Go to the question "how did the closest to you react when you have MS" or "what's the one thing most people do not understand about MS", read all the responses (there's a lot of them out there) and take comfort in the fact that you are not alone in this. There's lots of people around the world who are feeling the same way as you do, including myself.

July 12, 2025
A MyMSTeam Member

We have a code in my family, they ask and I say not today! If I stay in my room with the lights off, they stay away! My daughter will bring fresh fruit and cold water and place it by my bedroom door. My medicines are in my room and a mini fridge with ice packs my migraine mask and cap! The best way to let others know is be honest about how you’re feeling, don’t try to do things when you don’t feel able too!

August 23, 2025
A MyMSTeam Member

The only person I feel I need to explain things to is my husband. He's the only one here. Our kids are all grown and they accept when I tell them I can't do something anymore.

July 13, 2025
A MyMSTeam Member

Hi I'm not sure if it is m.s m only if the octor says you have m.s.

July 12, 2025
MyMSTeam

It's incredibly frustrating when family members don't understand what you're going through with MS. Many people struggle with this because MS symptoms aren't always visible to others, which can lead to misunderstandings and hurtful assumptions about being "lazy."

Consider recommending trusted MS information sources to your Show Full Answer

It's incredibly frustrating when family members don't understand what you're going through with MS. Many people struggle with this because MS symptoms aren't always visible to others, which can lead to misunderstandings and hurtful assumptions about being "lazy."

Consider recommending trusted MS information sources to your family to help them better understand the condition and its unpredictable nature. This can help them learn about how MS symptoms can vary from day to day and affect your energy levels. Be honest and realistic with your family about how you're feeling. Many MyMSTeam members share similar experiences of feeling misunderstood. Remember that it's important to communicate openly about your limitations and needs, especially when planning activities or discussing daily responsibilities.

If certain family members continue to be unsupportive or dismissive, consider connecting with others who better understand your experience. You're not alone in this challenge - many people with MS face similar struggles with family understanding.

July 12, 2025

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