I’m in a trial right now. I agree with the sentiment that i won’t do any drug trials. But i will do things that simply track day to day kind of activities.
I don’t think I’d want to donate any of my body at death.
And I’ll only do studies for compensation. I think science has had enough free from folk who look like me.
July 21, 2025
Note: I won't do a trial with any new medicine. However, this NIH study tracks you during your whole life span and at the end of your life they want you to donate your brain and spinal cord for medical research so they can find a cure. What's y'all thoughts??
July 21, 2025
Clinical trial participation in the MS community is around 22%, which is higher than average but lower than the actual interest level. Many people want to participate, but 74% report their doctors have never discussed trial opportunities with them.
Here are some key benefits of participating in MS studies
- Access to Show Full Answer
Clinical trial participation in the MS community is around 22%, which is higher than average but lower than the actual interest level. Many people want to participate, but 74% report their doctors have never discussed trial opportunities with them.
Here are some key benefits of participating in MS studies:
- Access to cutting-edge treatments
- Contributing to future MS research and treatments
- Learning new management strategies
- Opportunity to try different therapeutic approaches From member experiences, here are some practical considerations:
Pros:
- Can discover unexpected benefits (like enjoying new activities)
- Learn new ways to manage symptoms
- May receive compensation or incentives
Cons:
- Travel may be required
- Time commitment can be challenging with work/life
- May be excluded due to recent relapses
- Might need to change current medications
It's recommended to carefully evaluate how a study fits with your current treatment plan and lifestyle before committing.
July 21, 2025