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A MyMSTeam Member asked a question 💭
Rancho Cucamonga, CA

I just have a question. What is the best working meds i am on Ocrevus and I feel worse daily falls Iook like a crash test dummy. any suggestions? my doctor is not the best so im just looking for any advice. Thanks! Lyndie

October 7, 2025
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A MyMSTeam Member

There is a group on Facebook. Did ocrevus fail you. I'd go on it and get insight from them because of your falling feeling worse

October 7, 2025
A MyMSTeam Member

Do you mean baclofen? I’m on it 20mg 3 times a day and it helps keep the shakes and tremors away at least for me it does. It’s a type of muscle relaxant for spasms and I don’t have any side effects from it but everyone is different. I’m on the baclofen, Lyrica and my pain meds I never did the MS treatment my insurance has denied denied denied. But all those dangerous medication probably would have killed me. The messed up thing is I’m only alive becuase all of my diseases and illnesses fighting one another’s ,it’s a constant battlefiel.

October 7, 2025
A MyMSTeam Member

dont they always

October 7, 2025
A MyMSTeam Member

Ocrevus is what I have now just not helping so my search goes on

October 7, 2025
A MyMSTeam Member

That question is difficult to answer as everyone's MS is unique to them. The different MOA of the DMTs may mean what works for one person might not work at all for you. Sadly they don't have tests yet to determine if B-cells- T-cells or if something else is driving an individuals MS. So they throw whatever at it, if it works, great. I(f it doesn't you switch to find something that does. It's kinda funny, because when I used to lecture, everyone wanted to know what I took because I was doing so well. Had to repeat over and over, what is working for me, might not work for you. You have to be your own lab rat sadly and determine if your med is working or not,

October 7, 2025 (edited)

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