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I’m currently in the Glenrose Rehab Hospital in Edmonton, after having spent two weeks at the University of Alberta Hospital. I was in a coma for five days, had a breathing tube etc. my husband Geoff called 911 when he tried to wake me up and I was totally non responsive. It was a harrowing time for Geoff and my mom . Luckily I don’t remember anything. The tentative diagnosis is too many baclofen. Does this make any sense?
Dear Tracy so glad your going better ❤️ God bless you 🙏
@A MyMSTeam Member you are so right, sometimes it takes a few tries to get it right.
Finding things that work can be hard
Likely you took too many. O took Baclophen for 20 years. It is safe.
I personally had the small test dose of Ocrevus after Christmas of 2022. Then the big 6-month infusion was done on January 15 of 2023. On approximately March 15 of 2023 my mom found me standing locked inside my tiny bathroom totally unresponsive. An ambulance carted me away to the hospital in Sun City Center until I gained conscious control of my actions around April 7. Then they shipped me away to a locked Fletcher rehab facility Facility until April 18, 1973. That day was my 50th birthday, but I try my best to forget it. No Baclofen was involved, but I was in a walking coma of a sort for over 3 weeks. They kept claiming suspected bacterial meningitis but could never culture this so-called bacteria in my CSF from several lumbar punctures. Don't blame Baclofen unless it was a truly massive overdose. My coma was caused by an infusion of Ocrevus.
Becki Wheeler
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