I’ve had the original and 2 flare ups… I see a new team this week - so let’s see what the reason is 👍
Thanks for your reply 🫶
November 29, 2025
😳 so have you been diagnosed with both? Can you get both? This is all new to me - so I’m a bit ignorant I’m afraid…. I don’t mean to be rude 🫶
, I had a brain scan, then neck /spunal cord scan & comparison to scan in 2022 when I had some similar symptoms in a different part of my body. He said there was no need for lumbar puncture because it was clearly MS only mild though (whatever that means?)
That was with a private consultant in the UK. I’ve now been referred to the NHS neurologist & MS nurse/team (1st appoint with new neurologist on Friday Dec 5th 🤞
December 3, 2025
@A MyMSTeam Member. When I saw my now neurologist she prescribed a DMT at my first visit. Praying this new team can help you.
Mentioned Users
A MyMSTea...
November 30, 2025
Why might a neurologist say no DMT is needed for newly diagnosed mild RRMS?
While this is uncommon, your neurologist may be taking a cautious approach based on your specific situation. However, it's important to know that current medical guidance generally recommends starting a disease-modifying therapy (DMT) for people Show Full Answer
Why might a neurologist say no DMT is needed for newly diagnosed mild RRMS?
While this is uncommon, your neurologist may be taking a cautious approach based on your specific situation. However, it's important to know that current medical guidance generally recommends starting a disease-modifying therapy (DMT) for people with relapsing-remitting MS, even when symptoms are mild.
DMTs are designed to slow MS progression and reduce relapses before significant damage occurs. The goal is to prevent future disability rather than wait for symptoms to worsen.
Your neurologist might be considering factors like:
- Very minimal disease activity on your MRI scans
- No recent relapses
- Your overall health status
- Potential medication risks versus benefits in your specific case
It's really important to have an open conversation with your neurologist about why they're recommending this approach. You might want to ask:
- What criteria are they using to decide against DMT treatment?
- What signs would indicate it's time to start a DMT?
- How often will they monitor your condition with MRIs and clinical assessments?
- Are there any research studies supporting this wait-and-see approach for mild RRMS?
Many neurologists prefer starting treatment early to prevent damage that can't be reversed later. If you're uncertain about this recommendation, seeking a second opinion is completely reasonable and might give you more confidence in your treatment plan.
November 29, 2025
Ignore the rolled eyes - other people don’t have a clue what it’s like 💜
December 4, 2025