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Does anyone else address questions or updates, such as an ER visit, to their Neurologist, only to have the NP answer?

A MyMSTeam Member asked a question šŸ’­
Springfield, OH

Just for ONCE I'd like to have my Neurologist send the response. I understand that docs can get super busy, and because there aren't tons of MS Neuros, the ones there are seem to have like 3,000,000 patients. However, you mean he can NEVER respond back? Ever? šŸ˜’ When I go in for my yearly, I have to go over everything I'd already told him but he never saw cuz his NPs apparently don't communicate with him. It makes my šŸ‘æ-tude appear. What do y'all do when this happens? My GP actually told me toā€¦ read more

December 27, 2025 (edited)
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MyMSTeam

How can you improve communication with your neurologist when nurse practitioners keep responding instead?

Your frustration is completely understandable. Having to repeat everything at your yearly appointment because communication isn't flowing properly can be exhausting and makes you feel unheard.

Here are some strategies Show Full Answer

How can you improve communication with your neurologist when nurse practitioners keep responding instead?

Your frustration is completely understandable. Having to repeat everything at your yearly appointment because communication isn't flowing properly can be exhausting and makes you feel unheard.

Here are some strategies that might help:

Be Direct About Your Preference
- Specifically request that your neurologist respond to important updates like ER visits
- Ask the office staff to flag your messages as requiring the neurologist's attention
- Your GP and podiatrist gave you solid adviceā€”being explicit about wanting your neurologist's input is reasonable

Improve Communication Between Visits
- Keep detailed notes about symptoms, ER visits, and medication changes to share at appointments
- Inform all your providers about changes in treatment or diagnosis from other specialists
- Consider bringing a family member to appointments who can help ensure nothing gets missed

Address the Pattern Directly
- At your next appointment, explain that you're having to repeat information because it's not being communicated within the practice
- Ask how the office handles patient messages and whether there's a better way to ensure your neurologist sees critical updates
- Request clarification on when you can expect direct communication from your neurologist versus the NP

If this pattern continues and you're not getting the care coordination you need, it's worth considering whether this practice setup works for you. Your comfort and feeling heard matter in managing your MS effectively.

December 27, 2025
A MyMSTeam Member

I must be lucky, well I have MS so we could probably rule that out, but my doctor has several PAs and when I send him an email depending on the time I sent it he usually gets back with me the same day. I did luck out with my doctor because he is really well known in the neurologist scene . I had a subdural hematoma that required a craniotomy and out of the four neurologist that were treating me, they all knew him and told me that he was the best of the best. That could just be a good bedside manner, but Iā€™m pretty sure he is world renowned, and a pretty big deal. Hail to the chief.

December 30, 2025
A MyMSTeam Member

Hi Jennifer,
Iā€™m the polar opposite to you,
I go in and tell my story to every nurse, assistant, doctor, consultant as if they are just being told the first time. I go with the premise that they have zero knowledge about my case. I take the stance that they are too lazy to read my notes and that they donā€™t communicate with each other. I am not going to take the risk and depend on the professionals to communicate with each other. They have to tell me that they have enough information.
Itā€™s difficult to remember all the information. I bring a typed sheet either all my symptoms and concerns and treatments with me.

I donā€™t care how I come across,

Itā€™s too frustrating thinking that they have read their notes. Nobody Knows it better than yourself. Start writing down your symptoms and ask yourself

ā€œwhat is the main thing you want out of the meeting with the medical teamā€

Stay focussed on that. Eg
Pick your worst symptom or If you have a new or terrible symptom that you are finding difficult to live with ask them about it. And advice on treatment for it.

šŸ„°šŸ„°šŸ„°šŸ„°šŸ„°šŸ„°šŸ„°

December 28, 2025
A MyMSTeam Member

thankyou
dbmom1....
Happy day..
Blessings ā¤ļø joy ā¤ļø

January 12
A MyMSTeam Member

Thankyou ....
dbmom1...awsome day..
Blessings ā¤ļø joy

January 9

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