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A MyMSTeam Member asked a question 💭

Hello! My daughter has MS and her symptoms are hard to manage. My daughter is 36 but her symptoms are deeply impacting her confidence and self awareness. I find myself needing to physically help her while at home but I work 40 hours a week and commute 30-40 minutes everyday.

I live in Ohio and would like to know your experiences with hiring someone to help yourself or your loved one with MS.

January 28
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How can you arrange for at-home nursing care for your daughter with MS?

It's understandable that balancing work and caregiving is challenging. Many families in similar situations have found that bringing in professional help makes a significant difference for everyone involved.

Getting Started

First, identify what Show Full Answer

How can you arrange for at-home nursing care for your daughter with MS?

It's understandable that balancing work and caregiving is challenging. Many families in similar situations have found that bringing in professional help makes a significant difference for everyone involved.

Getting Started

First, identify what specific help your daughter needs. This might include:
- Assistance with bathing, dressing, or toileting
- Help with meals and household tasks
- Support with mobility and transfers
- Medication management

The National Multiple Sclerosis Society offers a needs assessment worksheet that can help you think through these details.

Two Main Options for Hiring

You can hire a caregiver directly or work through a home health agency. Hiring directly gives you more control and may cost less, but requires more time for vetting, interviews, and managing payroll. Using an agency is faster and they handle the administrative work, though it typically costs more.

Either way, make sure caregivers have background checks, good references, and compatible personalities with your daughter. Building trust and rapport is essential. Paying for Care

Many insurance options can help cover costs:

Medicare may cover part-time nursing and therapy if a doctor documents it as medically necessary and your daughter meets homebound criteria.

Medicaid covers home health services for those meeting income and disability requirements. Ohio has specific Medicaid programs you can explore.

Private insurance policies vary, so check your daughter's coverage details for home health benefits.

Your daughter's doctor can refer you to a social worker who specializes in navigating these options and determining what coverage she qualifies for.

Support for You

Consider respite care services that can give you breaks when needed. A MyMSTeam member shared: "I used to look at and think that those with caregivers were sorry souls. Now I think how blessed I am to have good ones."

Building a care team isn't giving up—it's taking charge of your daughter's wellness while protecting your own well-being too.

January 28

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