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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone been treated unfairly by others because although we feel ill, we may not look like we are suffering?

A MyMSTeam Member asked a question 💭
Florissant, MO
March 11
 · 
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Answer Summary

Members responded strongly to the question about being treated unfairly despite not looking visibly ill, with many sharing painful experiences... Read more

Members responded strongly to the question about being treated unfairly despite not looking visibly ill, with many sharing painful experiences of being dismissed, doubted, or even fired from jobs after their MS diagnosis became known. Several members described heartbreaking situations including unsupportive spouses, family members lacking empathy, and being denied disability benefits despite a lawyer's help. A recurring theme was the deep comfort found in connecting with others who truly understand, with many expressing that while outsiders may not get it, this community feels like a safe and understanding tribe.

A MyMSTeam Member

@A MyMSTeam Member I don’t feel like I should have to educate people , that’s their problem if they don’t have compassion or empathy for other people who are in pain. I understand what you mean though.

March 11 (edited)
A MyMSTeam Member

If you don't have MS you don't know. It is so hard to explain, people look at you like you are crazy. I wouldn't wish this MS crap on Noone
God bless 🙏 all MS warrior's that's all I can say.

March 11
A MyMSTeam Member

Thanks for sharing, Tiffany246. Yes, it is frustrating. I guess that's where we are supposed to educate people about it. I am up for the cause. However, I will not waste my time anymore with bullies and their ignorance.

March 11
A MyMSTeam Member

Ha ha ha Terri, like this 🖕😁

March 11
A MyMSTeam Member

#KiyonaC ALL the time. When I have had enough enough I have mastered the art of giving the evil eye. I make faces along with giving out hand signals preferably only using one hand that points to the other hand that holds up the middled finger. Sign language and Body language are wonderful ways to communicate what others can not pick up on

March 11

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