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Anyone with PPMS at older age and lots pain? I feel so alone with this type of MS and there is not much for treatment.

A MyMSTeam Member asked a question 💭
Westfield, MA

Just started ocrevus but was afraid to as such limited chance of doing anything for PPMS

March 22
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Reactions
A MyMSTeam Member

It’s working for some. Some use natural remedies. Feel free to ask on q and a

March 22 (edited)
A MyMSTeam Member

What helps for pain. Hard to diagnose nerve or muscle or both. Nerve drugs are so awful. I cannot sit or lie down without pain in low back buttocks.

March 22
MyMSTeam

Are you experiencing pain with PPMS at an older age, and feeling isolated about treatment options?

You're not alone in feeling this way. PPMS affects about 10% of people with MS and is typically diagnosed later in life—about 10 years later on average than relapsing forms. Pain, numbness, and tingling are common symptoms Show Full Answer

Are you experiencing pain with PPMS at an older age, and feeling isolated about treatment options?

You're not alone in feeling this way. PPMS affects about 10% of people with MS and is typically diagnosed later in life—about 10 years later on average than relapsing forms. Pain, numbness, and tingling are common symptoms that many people with PPMS experience.

It's completely understandable to feel apprehensive about starting Ocrevus. However, it's actually encouraging that you've begun treatment. Ocrevus is currently the only FDA-approved medication specifically for PPMS, and it works by targeting B cells that contribute to inflammation and damage in the central nervous system.

In clinical trials, Ocrevus has been shown to slow disability progression in people with PPMS. Some studies found it helped delay the need for a wheelchair by an average of seven years. While it may not work for everyone, starting treatment early can improve outcomes. Beyond Ocrevus, doctors can prescribe medications to help manage specific symptoms like pain, fatigue, depression, and sleep issues. Physical therapy, occupational therapy, and lifestyle changes including regular exercise and a healthy diet may also help improve your quality of life and prognosis.

Many people with PPMS maintain their thinking and memory abilities, even as motor symptoms progress. While PPMS is challenging, you're taking an important step by pursuing treatment.

March 22

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