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Ppms 62 years old

April 6
 · 
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A MyMSTeam Member

"Pins and needles or prickling — like when your arm or leg “falls asleep” after sitting on it too long, but it can last much longer and happen without an obvious trigger.
• Tingling or buzzing — sometimes like a mild vibration, electric fizz, or “TV static.”
• Numbness — the area feels “asleep,” dead, heavy, rubbery, or like it’s covered in a thick glove/sock/wax. You might feel pressure but not light touch.
• Burning or hot sensation — skin feels like it’s on fire or overly warm, even though it’s not.
• Crawling or creepy-crawly feelings — like ants, insects, or bugs moving under or on the skin.
• Itching, tickling, or trickling — without any visible rash or actual water.
• Other odd sensations — electric shocks, stabbing, squeezing/tightness (sometimes called the “MS hug” around the torso), or hypersensitivity where light touch (like clothing) feels irritating or painful.
It can affect one side of the body more than the other, or both sides. Sensations often start in the extremities (fingers/toes) and may move upward. They can worsen at night, with heat, stress, fatigue, or during a relapse, but they sometimes occur randomly on their own. 
Everyone’s experience is unique—some find it mostly just distracting, while others find certain types (like burning or the crawling feeling) more bothersome. It doesn’t always cause pain, but when it does, it’s sometimes called dysesthesia (unpleasant altered sensations)."

April 9
A MyMSTeam Member

This disease!! What a joy!! 🫠

April 9
MyMSTeam

Why does it feel like you're walking on rocks or your foot is wrapped in burlap with PPMS?

These uncomfortable sensations are forms of paresthesia, which affects up to 80% of people with MS. In PPMS, nerve damage from lesions in your central nervous system disrupts the signals between your brain and feet.

Your brain may Show Full Answer

Why does it feel like you're walking on rocks or your foot is wrapped in burlap with PPMS?

These uncomfortable sensations are forms of paresthesia, which affects up to 80% of people with MS. In PPMS, nerve damage from lesions in your central nervous system disrupts the signals between your brain and feet.

Your brain may misinterpret or recreate sensations, leading to feelings like:
- Walking on rocks or pebbles
- Feet wrapped in burlap or rough fabric
- Shoes feeling too tight when they're not
- Pressure or constriction that isn't actually there

This happens because the damaged nerves can't properly transmit sensory information. Your brain tries to make sense of incomplete signals, sometimes creating phantom sensations that feel very real but don't match what's actually touching your feet.

What can help?

While paresthesia can be frustrating, tracking your symptoms may reveal patterns. Note when these sensations occur, what triggers them, and what provides relief. This information can help you and your healthcare provider develop strategies to manage these uncomfortable feelings.

Many MyMSTeam members describe similar experiences - one member mentioned feeling like they're "walking in quicksand," while another described their foot sensations as particularly disturbing. You're definitely not alone in experiencing these strange sensations with PPMS.

April 6

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