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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My MRI's in 2017 and 2020 showed no new lesions. That's when I felt like a transformation occured like into a butterfly!
They monitored me for 4 years.

In January of 2023 I could walk 100 steps with a walker.
Of course in spring and fall 2023 I had the surgeries to fix the long-term bladder issue and the long-term spasticity issue with the Baclofen pump.
Today, my legs are straight, I have No pain, but due to the surgery I can't stand or walk.

April 7
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Learn more about the drug treatment mentioned above

Answer Summary

Members shared their personal experiences with Lemtrada, a powerful disease-modifying therapy used primarily for RRMS, with several reporting... Read more

Members shared their personal experiences with Lemtrada, a powerful disease-modifying therapy used primarily for RRMS, with several reporting no new lesions after treatment while still managing existing ones and ongoing relapses. A recurring theme was the trade-offs involved, including side effects like thyroid damage, long relapses, and EU safety concerns that led to restrictions on the drug. Members also discussed related topics like Baclofen pumps for spasticity, home PT through the Visiting Nurse Association, and the emotional weight of navigating complex MS treatment decisions.

A MyMSTeam Member

The main difference between the two types of baclofen is how you take the medication. Oral baclofen is typically the initial form of treatment for mild to moderate forms of spasticity. You can take this medication by mouth several times per day.

A baclofen pump delivers a liquid form of baclofen directly into your spinal fluid, using a device implanted into your body. A baclofen pump is FDA-approved for the treatment of severe spasticity.

April 8
A MyMSTeam Member

Thank you all for the good wishes! I really appreciate it! Blessings to each one of you!
🙏🤗❤️

April 11
A MyMSTeam Member

Thanks for the hug Danny have a good weekend

April 10
A MyMSTeam Member

I always wish you the best 🥰 @A MyMSTeam Member

April 9
A MyMSTeam Member

just curious to learn, does the baclofen pump do a steady job of blocking spasms better than taking pills 4 times a day?

April 8

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