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After my first ofatumumab, I have deep doubts about my future

A MyMSTeam Member asked a question 💭

I am a newly diagnosed multiple sclerosis patient from China, 30 years old. In China, multiple sclerosis is classified as a rare disease, and the number of people affected is relatively small. But when I learned about this forum, I couldn't wait to join all of you.

My clinical symptoms include double vision and dizziness. My condition may not seem severe, but after reviewing my MRI report, my doctor noted that I have quite a few lesions and they are active. He chose ofatumumab for me. Honestly… read more

April 17
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Reactions
A MyMSTeam Member

When I'm down and out I stop and think their is always someone who has it worse than I do. So keep on keeping on and smile as I go. Wish you the best of luck throughout your journey and God bless 🙏you

April 17
A MyMSTeam Member

Hello @A MyMSTeam Member 👋 welcome 💜 Your concerns are understandable, In answer to your concerns: there are lots of us who are on/have been on various DMTs (disease modifying therapies) and these play an important part in preventing new lesions; many of us have children; none of us can predict symptoms in the future, however many of us are living fulfilling lives as we grow older. Wishing you well, you are not alone.🤗

April 17
A MyMSTeam Member

Dear Georgiagansorry I had a had time speaking with you but please forgive me I had a I don't use these but I also wish you the best

There are side effects for one but not the other I also like Anthony
Wish you the best
GOSbkessing🙏
🙏🙏🙏🙏🌷🌷🌷

April 18
A MyMSTeam Member

At present i I Feel othercan help
Help fat you at present
My lovesto you
Man y blessings
Take care
Thank you take care
Many blessings 🙌 🙏 ✨️ 💓 💖 ❤️ 🙌 🙏

April 17
MyMSTeam

How can I manage doubts about starting a high-efficacy MS treatment like ofatumumab, and what should I know about family planning with MS?

It's completely understandable to feel uncertain after starting a new treatment, especially a highly effective one. Trusting your doctor's recommendation is an important first step Show Full Answer

How can I manage doubts about starting a high-efficacy MS treatment like ofatumumab, and what should I know about family planning with MS?

It's completely understandable to feel uncertain after starting a new treatment, especially a highly effective one. Trusting your doctor's recommendation is an important first step, particularly since your MRI showed active lesions. Starting treatment early can help prevent future damage.

Managing Treatment Doubts

Many people with MS experience stress when making treatment decisions. Here are some helpful approaches:

• Communicate openly with your neurologist about your concerns and questions
• Remember that your doctor chose this treatment based on your specific situation
• Give yourself time to adjust - some side effects may fade over time
• Focus on the goal: preventing new lesions and relapses

One MyMSTeam member shared: "You have to ask yourself: Are the chances of side effects small enough that it outweighs the chances I may have another relapse which could cause permanent damage?"

Family Planning Considerations

Regarding having children, it's important to discuss pregnancy planning with your healthcare providers. They can guide you on:

• When to safely plan pregnancy around your treatment
• Which medications are safer during pregnancy
• How to manage MS during and after pregnancy

The decision about medication use during pregnancy involves understanding the quality of safety information available and weighing the benefits of treatment against potential risks.

Your feelings are valid, and many others share similar concerns. Stay connected with your healthcare team as your partner in managing MS.

April 17

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