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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone else ask Non-MSers questions, just to see if they go through the same?

A MyMSTeam Member asked a question 💭
Liverpool, UK

As a teen i was taught to stop complaining, my lesson was learnt and i became silent. My symptoms became normal as i found a work around for everything, now i don't know whats normal and whats MS

April 26
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Answer Summary

Members connected deeply over the question of not knowing what symptoms are MS-related versus just normal, especially when childhood... Read more

Members connected deeply over the question of not knowing what symptoms are MS-related versus just normal, especially when childhood experiences taught them to stay silent about pain. Several members shared that being dismissed by doctors, family, or caregivers made it harder to trust their own bodies and speak up, with some waiting years or even decades to receive a proper MS diagnosis. A recurring theme was that this community offers a safe space to voice symptoms without judgment, and members encouraged each other to seek MS specialists, neurologists, or MS nurses for better guidance.

A MyMSTeam Member

We have a right to complain, MS so sucks!

April 26
A MyMSTeam Member

We are told to keep a, "pain journal...." Who the F wants to remind themselves of their pain everyday? A chocolate tea pot sounds delicious btw...

April 26
A MyMSTeam Member

So many taught our symptoms dont need treatment. Kind of disgusting.

Hope everyone is ok

April 26
A MyMSTeam Member

Its being able to distinguish if its something normal or something im making up.
I can see what you're saying but trusting my body and symptoms is like trusting a chocolate tea pot

April 26
A MyMSTeam Member

It seems like you had a rough childhood , and I am sorry you had to go through that. It’s really difficult to tell the difference sometimes between MS and other symptoms because a lot of them overlap, even more for women. Do you have an Ms specialist or a neurologist who you can explain your symptoms to?

April 26

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