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Does anyone else have severe pain in the thoracic spine from MS? It's killing me and I need to do more computer work for my recertification

A MyMSTeam Member asked a question 💭

I have SPMS and am 65 yo. I also have a hole in the macula in my right eye that has to be repaired and I will have to hold my head down for days. I can stand the pain now. I don't know how I'm going to be able to handle it when I have surgery.

April 27
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Answer Summary

Members rallied around a question about severe thoracic spine pain from MS, offering both emotional support and practical advice. Several... Read more

Members rallied around a question about severe thoracic spine pain from MS, offering both emotional support and practical advice. Several members encouraged speaking openly with a doctor or neurologist about the pain, with suggestions including asking about a vest brace, work accommodations, and spine-specific treatments. A recurring theme was that MS pain is often overlooked, and that advocating for yourself with your medical team is key to finding relief.

A MyMSTeam Member

I agree Terri talk to your doc/Neurologist and let them know what exactly you are going through. See if they can recommend something for you to help the pain. Prayers 🙏🙏🤗🤗

April 27
A MyMSTeam Member

Definitely talk to doctor about pain
Pain can cause stress that causes more pain.
The never ending cycle uuugh
Bless your heart ❤️

April 28
A MyMSTeam Member

Terri, I agree with the recommendation to speak to your doctors and explain everything to them. Ask for suggestions and help with managing your pain. Good luck. Sending prayers 🙏🧡🙏

April 27
A MyMSTeam Member

I feel Terriyou need to have this checked out by your Doctoe or neurologist take care
Just to be sure of its cause??blessings ❤️🌿🌿

April 27
A MyMSTeam Member

Thank you all. I had the surgery to repair the hole in the macula. They told me i could lay on my side and that is working. I do have arthritis in my spine and degenerative disc disease and I know about that but it is particularly bad in the thoracic spine where my lesions are. But I don't think enough attention is given to pain from MS.

May 7

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