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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Villa Rica, GA

I've been going to my neurologist for 6 years for ms but it's such a ways. So I found one closer to my home. To my shock he stayed i didn't have ms after I was on aubagio for 2 years. If I don't have ms what can I have I'm sick daily with fatigue and pain all over my body.

May 6
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Answer Summary

A member shared the shocking experience of being told by a new neurologist that they may not have MS after six years of treatment, sparking a... Read more

A member shared the shocking experience of being told by a new neurologist that they may not have MS after six years of treatment, sparking a supportive conversation about misdiagnosis in the community. Several members encouraged seeking a third opinion, getting thorough testing including MRI and bloodwork for conditions like lupus or Lyme disease, and asking about a medication washout process to clear Aubagio from the body as quickly as possible. A recurring theme was that while a misdiagnosis is deeply unsettling, it can also open the door to finding real answers and proper care.

A MyMSTeam Member

I was almost misdiagnosed with ALS. I'm like ummm lets try more tests because ain't no way

May 7
A MyMSTeam Member

That’s great. I take Aubagio and from what I understand is that it takes two years to leave the body after you stop taking it unless you do this charcoal washout. Please , ask about removing this medication asap from your body if you don’t have MS. @A MyMSTeam Member

May 6 (edited)
A MyMSTeam Member

Lumbar puncture

May 6
A MyMSTeam Member

Many things...how were you officially dx at the beginning? LP (lumber puncture, MRI Brain + thoracic, & spine?

May 6
A MyMSTeam Member

it could be good news as well

May 7

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