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A MyMSTeam Member asked a question 💭
Peoria, IL
May 9
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Answer Summary

Members shared thoughtful advice on how to explain MS symptoms to a young child, with several noting that the approach should match the... Read more

Members shared thoughtful advice on how to explain MS symptoms to a young child, with several noting that the approach should match the child's age, maturity, and curiosity level. Practical suggestions included reading children's books about MS together, watching age-appropriate DVDs, and explaining things layer by layer over time rather than all at once. A recurring theme was that love and honesty guide these conversations best, and that nurturing a child's curiosity can turn a hard topic into a meaningful connection.

A MyMSTeam Member

One solution is to explain layer by layer, starting with the general information and then gradually going into more detail only if requested

May 17 (edited)
A MyMSTeam Member

@A MyMSTeam Member, I did not tell my twins about MS until they were 10 and when I had a major relapse. They were angry with me for not telling them before. I think we all have to make tough decisions about when/how to tell children, there is no right or wrong. However if I could go back I would have introduced the topic much earlier so they grew up with some understanding. There are a couple of books about ‘moms’ with MS that might be helpful. Take care 🫂💜

May 17
A MyMSTeam Member

Don't , just tell you are not well. why would you want or expect an adult response from a child and even most adults don't get it .

May 11 (edited)
A MyMSTeam Member

We don't have young children in our family, or at least, none we see. What I would explain would depend on the child

May 9
A MyMSTeam Member

You’re welcome @A MyMSTeam Member, I tried to find one about a grandparent with ms but no luck. Well she sounds like fun - I love the curiosity that children have. You never know! Nurture her curiosity 🤗💜

May 18

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