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I am a caregiver and family says drs wont help to get this done. At a stand still
Any advice?

May 21
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Reactions
A MyMSTeam Member

See a physiatrist. They can evaluate and get the script.

May 25
A MyMSTeam Member

Try getting an appointment with a Physiatrist/PMR to get a prescription for the brace.

May 25
A MyMSTeam Member

Was going to mention to see an orthopedic provider. Ask for a referral.

May 21
MyMSTeam

What a frustrating situation — advocating for proper care shouldn't feel like climbing a mountain, but unfortunately it sometimes does. The good news is there are some clear steps that can help move things forward.

When a foot rolls outward, it can be a sign of foot drop, which is common in MS. This absolutely warrants a Show Full Answer

What a frustrating situation — advocating for proper care shouldn't feel like climbing a mountain, but unfortunately it sometimes does. The good news is there are some clear steps that can help move things forward.

When a foot rolls outward, it can be a sign of foot drop, which is common in MS. This absolutely warrants a proper evaluation, and a brace (called an Ankle-Foot Orthosis or AFO) can make a real difference in safety and mobility.

Here are some steps to help break the standstill:

- Request a neurology referral — Ask the neurologist specifically for a referral to a *neuro physical therapist* (one who specializes in neurological conditions like MS), rather than a general PT
- Use safety as the key argument — Emphasize the fall and injury risk to the doctor; framing it as a safety concern often carries more weight
- Ask for an orthotist referral directly — A doctor can refer directly to an orthotist (a brace-fitting specialist) without going through PT first
- Document the symptoms — Keep a written log of when the foot rolls, any near-falls, and how it affects daily activity — this strengthens the case
- Consider a second opinion — If the current doctor isn't responsive, seeking another neurologist's perspective is completely reasonable It's worth knowing that AFO devices are a well-established, commonly used treatment for this exact issue in MS. No one should have to fight this hard for a safety device — persistence is key, and the concern is completely valid.

May 21
A MyMSTeam Member

Leslie my Neurology doctor Prescribed me one. Wish you the best of luck with this

May 21

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