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Diagnosed 1.5 yr ago due to optic neuritis. Found some “old lesions” in my brain along with current ones. So not sure how long the problem has been there. The lesion that was in my spine has gone in recent MRI. I’m taking Kesimpta currently. Spent time since diagnosis healing my gut in case leaky gut was the cause. Live a generally healthy lifestyle. Only symptoms now are the odd electric shock in head and numb middle finger and toes. I live in Florida so heat also makes things worse but am… read more
I think it is great you worked on healing your gut, there is so much research on how leaky gut affects the brain. I feel that if you choose to go the natural route that is up to you . If you are making this decision only due to the cost of medication, then don’t stop. First reach out to Novartis and see if you qualify to receive the medication for free or very low cost . You can also speak to your neurologist and see if there is a different medication that you can switch to. Also, try to see if you qualify for state insurance. Either way I wish you lots of luck!!
Thank you Tiffany! It’s not the only reason. I did ALL the research before choosing the medication and as far as I can see Kesimpta was the only option due to my paranoia? I guess you could call it. I could be wrong because I’m not a DR but from what I researched every other meds cause microbiome disruption or have percentages risk of cancer which also run in my extended family. So weighing up all the risks that was my best choice at the time but now the cost is the main factor and I am not willing to risk destroying my gut - so what should I do?!?!?
I do not take a DMT. I took one for about 2 years but then stopped. I've had no changes in my MRIs since 2018. My neurologist tells me age has something to do with that. She also tells me that while I may not have any new or active lesions, damage from the lesions I do have is not going away, so I'm not healing but staying steady at the moment.. I live in a hot climate but not even considering moving. Maybe if I was younger. But our house is paid for and at my age that is a consideration when thinking about moving.
I completely understand what you are going through. I did not want to go on a dmt but feel scared not to be on it so ,I take one . Maybe I will change my mind in the future. I think only you know what’s best for your body.
It's genuinely encouraging to hear that the spinal lesion has cleared and that symptoms are relatively mild right now — that's a real positive sign. The healthy lifestyle focus is absolutely worthwhile and can complement treatment meaningfully.
That said, stopping a disease-modifying therapy (DMT) like Kesimpta is a Show Full Answer
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