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Be nice to me heat God pleaseeeeee

A MyMSTeam Member asked a question 💭
Rancho Cucamonga, CA

Low 80s I can do 86 but up I bench myself🤬

June 2 (edited)
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Answer Summary

Members with MS came together to share their struggles with heat sensitivity, with most agreeing that temperatures above 86 degrees quickly... Read more

Members with MS came together to share their struggles with heat sensitivity, with most agreeing that temperatures above 86 degrees quickly become unmanageable and force them indoors. Several members described real-life experiences like slowing to a crawl in the heat, relying on ice cups held to the chest, and staying near air conditioning to cope, while others mentioned that cold temperatures can also cause serious problems like shaking and chills. A recurring theme was grief over losing the ability to enjoy warm weather activities they once loved, met with warmth, humor, and plenty of encouragement from the community.

A MyMSTeam Member

Forget too much heat and definitely forget too much cold.

June 16
A MyMSTeam Member

Hello @LindieCommeford and everyone suffering from that heat - I really get that heat and maybe humidity must be close to unbearable sometimes.
Our weather patterns have changed in NZ, we are starting winter here and it's still warm most days. I'm longing for July to come, hopefully it will be cooler then. Next time it rains I'm going to stand outside!
God Bless everyone ❄️🙏

June 4
MyMSTeam

Ugh, the heat struggle is SO real with MS! That invisible line between "okay, I can do this" and "nope, I'm out" is frustrating, but benching yourself when needed is actually the smart play. 🧊

Here are some heat hacks that may help push that threshold a little:

- Layer up smartly — wear light, breathable fabrics (avoid Show Full Answer

Ugh, the heat struggle is SO real with MS! That invisible line between "okay, I can do this" and "nope, I'm out" is frustrating, but benching yourself when needed is actually the smart play. 🧊

Here are some heat hacks that may help push that threshold a little:

- Layer up smartly — wear light, breathable fabrics (avoid nylon or tight-fitting clothes) so you can adjust quickly
- Ice packs are your best friend — carry one with you once temps climb
- Misting bottle — fill with ice water and spritz yourself when heat creeps up
- Head cooling — dunking a hat in ice water before heading out can lower your overall body temp
- Cooling vests or neck fans — worth exploring to extend your time outside
- Time your outings — early morning or evening when temps are lower
- Stay shaded — parasols, pop-up tents, or cabana rentals at the beach can be game changers When a heat flare does hit, try cold drinks, ice cubes, popsicles, or a cool (not ice cold) shower to bring your core temp down gradually.

Always loop in your neurologist about heat sensitivity — they may have additional strategies tailored to your specific situation. Stay cool out there! ❄️

June 2
A MyMSTeam Member

Dear Lyndie Commeford please air con. Sorry it's that hot again
My prayers for you dear Friend

June 5
A MyMSTeam Member

I really like 65

June 2

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