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What do they do when a MRI can cause a seizure, it does with me, I can hear everything going on but have no control over muscles .

A MyMSTeam Member asked a question 💭
Beatrice, NE
June 3
 · 
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Answer Summary

Members rallied around a community member who shared a deeply distressing experience of having a seizure during an MRI despite warning staff... Read more

Members rallied around a community member who shared a deeply distressing experience of having a seizure during an MRI despite warning staff beforehand, resulting in a broken sternum from a sternal rub and being sent home without any follow-up contact. Several members expressed strong support and encouraged legal action, noting the member was not treated properly and that a case like this would likely settle out of court. A recurring theme was the frustration of not being heard by medical staff, the importance of advocating for oneself, and the community offering both emotional comfort and practical suggestions like requesting records and seeking an in-person visit.

A MyMSTeam Member

Wow ! That is unbelievable, I think you should consider a lawsuit. I know it can be so stressful to have to go through that, but you were definitely not treated properly. Sorry that you had to endure that. I hope you are ok now 💕

June 3
A MyMSTeam Member

Margaret, after reading about what happened to you, they dismissed what you stated.

You’re not asking for advice, but if you did I would sue!

Thats terrible how they handled you. I’m so sorry!

That should not have happened.

June 3
A MyMSTeam Member

Did they ever discuss you taking an anti seizure medication before they gave you the MRI? That’s awful that they did that to you .

June 3
A MyMSTeam Member

Maybe at a minimal make an appointment to go in person or web visit?

It’s important to know the results. Play along with their silence while seriously considering legal action!

It really sounds you have a case! A case like your’s would most likely *settle out of court!

June 4
MyMSTeam

That sounds really frightening — being aware of your surroundings but unable to control your muscles during a seizure is a lot to go through. What you're describing sounds like it could be a focal (partial) seizure, where only one area of the brain is affected, which can cause loss of muscle control while still remaining Show Full Answer

That sounds really frightening — being aware of your surroundings but unable to control your muscles during a seizure is a lot to go through. What you're describing sounds like it could be a focal (partial) seizure, where only one area of the brain is affected, which can cause loss of muscle control while still remaining conscious.

It's important to let your neurologist know this is happening, especially since MRIs are such a key tool for monitoring MS. They need to know so they can take precautions and find the safest way to get the imaging done. Here are some things your care team may consider:

- Medication adjustments — Antiepileptic drugs (AEDs) may be prescribed or adjusted to help reduce seizure risk before and during the MRI
- Medical supervision during the scan — Having medical staff present and prepared in case a seizure occurs
- Shorter scan sessions — Breaking up the MRI into shorter periods to reduce triggers
- Pre-scan sedation — In some cases, a doctor may recommend mild sedation to help keep you calm and reduce seizure risk

The most important step is having an open conversation with your neurologist before your next MRI so they can create a plan tailored specifically to you.

June 3

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