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OK, if you guys had lymph nodes swollen from your neck up your head on the right side like some of the size of a quarter. What would you do?

A MyMSTeam Member asked a question 💭
Struthers, OH

I am 49 years old. I was diagnosed with MS in 2011. I’ve been on Tysabri since 2013. I had to go on disability in 2016. The stress of my job put me in a wheelchair and I had to have plasmaphrisis. I have mild relapse remitting. I have 23 lesions in my brain, and I have a fusion from C3 to C7 from a fall, and I have dense patchy fog from my service goes spine to my sciatic, which I really don’t know what that means now I am an empty nester going through menopause, having grandkids dealing with… read more

June 13
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A MyMSTeam Member

I would say call your neuro. Get some blood work. Lymph nodes detect infections.

June 13
MyMSTeam

First of all — boy mom, empty nester, grandkids, daughter-in-laws, menopause, AND MS? You deserve a medal. Or at least a very long nap.

Now, to your question: what should you do about swollen lymph nodes the size of a quarter running up the right side of your neck?

See your doctor as soon as possible. Lymph nodes that Show Full Answer

First of all — boy mom, empty nester, grandkids, daughter-in-laws, menopause, AND MS? You deserve a medal. Or at least a very long nap.

Now, to your question: what should you do about swollen lymph nodes the size of a quarter running up the right side of your neck?

See your doctor as soon as possible. Lymph nodes that large need to be evaluated promptly. Here's what makes this more urgent in your situation: Being on Tysabri is an important factor here. Tysabri works by calming the immune system, which can make the body more vulnerable to infections. Swollen lymph nodes in someone on an immune-suppressing medication like Tysabri should always be checked out quickly. Swollen lymph nodes are not a direct MS symptom, but they can be a sign of infection — which is more of a concern when on Tysabri. Your doctor will likely do a physical exam and may order blood tests or other tests to find the cause.

Seek immediate medical care if you experience:
- Difficulty swallowing or breathing
- High fever
- Unexplained weight loss
- Night sweats

See your doctor urgently if the lymph nodes:
- Keep getting bigger
- Have been swollen for 2–4 weeks or more
- Feel very hard and don't move when pressed
- Appeared for no clear reason With your C3–C7 fusion and everything else going on, your medical team really needs the full picture here. Don't wait on this one — quarter-sized lymph nodes are worth a same-day or next-day call to your neurologist or primary care provider.

June 13
A MyMSTeam Member

Hello @A MyMSTeam Member, get checked out. 🤗💜

June 14
A MyMSTeam Member

If your on DMTs, always notify your neurologist if you suspect it's a problem that could be infection related.

June 13
A MyMSTeam Member

I also agree: PCP is step 1! With my wife and I lymph nodes both swollen like that for radically different reasons. Both had bad issues that the body was fighting, but each had to be treated in radically different ways. Both started with our PCPs and both are healthy and happy today, so get your doctor (or even urgent care) involved ASAP!

June 13 (edited)

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