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A MyMSTeam Member asked a question 💭
June 13
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A MyMSTeam Member

Thanks for the comments everyone. I haven’t been diagnosed but going through tests due to multiple symptoms I have that align with MS. I’m waiting on a brain MRI appointment for July 11. Hoping for some answers. I have so many symptoms that align with MS. I saw a neurologist and she believes I just have migraines but some things I feel don’t match with migraines, however I could be wrong. I also had multiple red flags come up with said neurologist such as my appointment was booked at a clinic that she apparently walked away from and I got zero notification of this so when I called to confirm my appointment I was told she was no longer there and that I should have been called. I was told of two other clinics that she practices out of and told to call them. When I did, neither one of those clinics had any reference of me nor did my actual doctor have any notification that this neurologist had left the clinic that my scheduled appointment was at. I finally was able to get in touch with someone from one of her other clinics and they did still end up seeing me, but I was a bit disappointed that there was no regard to what happened- no apology or anything. And when I saw the neurologist I felt dismissed of all my symptoms and all she heard was headaches and wants to push Botox.

She did decide to order blood work to test for autoimmune disorders. When I went for bloodwork the lab tech asked if this was a new doctor because she couldn’t find the proper info on her. Red Flag. My gut is telling me something is off.

Anyway, ya so I was just curious about migraines and MS. If they can be related.

A few symptoms I have that I’m unsure if migraines cause are saddle area numbness (I did have a lumbar MRI for this when I was in the ER, which came back fine - that’s why I am now having a brain one done) One leg not functioning properly - I could walk but not lift my leg or do a heel to shin exercise when assessed by the doctor as well as I couldn’t bring my foot forward while doctor pushed downward - was weak. I also have bowel and bladder issues. Among other things like tingles, numbness, pulsing sensations, inner tremors, ear ringing, right ear is muted hearing, weird burning sensations in legs.

Thanks for listening
Much love

June 14
A MyMSTeam Member

Make an appointment with a medical eye doctor ASAP

June 13
A MyMSTeam Member

Yes , I have been getting migraines since I was 12 years old. When I got into my 20s I starting get the “Aura” (Kaleidoscope vision) about 20 minutes before the actual head pain. 🤕 if that happened , I knew I had to stop everything and leave wherever I was immediately.

June 13
A MyMSTeam Member

yes, they are. Someone asked this same question 2 months ago. Before I got treatment, I'd hve migraines nearly every day, the first few were unbearable.

June 13
MyMSTeam

Yes, migraines are quite common with MS — more common than in the general population, actually. Research suggests that people with MS have nearly twice the odds of experiencing migraines compared to those without MS.

Studies show that between 50% and 60% of people with MS experience headaches, and around 24% specifically Show Full Answer

Yes, migraines are quite common with MS — more common than in the general population, actually. Research suggests that people with MS have nearly twice the odds of experiencing migraines compared to those without MS.

Studies show that between 50% and 60% of people with MS experience headaches, and around 24% specifically experience migraines. In one study, about 47% of people with MS had migraine pain at least seven days a month. That's a lot of headache days! There are a few reasons migraines may occur with MS:

- Inflammation and demyelination — nerve damage from MS can trigger migraine activity in the brain
- MS relapses — flare-ups have been linked to higher rates of migraine
- Medications — some disease-modifying therapies (DMTs), particularly interferon-based ones, can increase headache severity. Natalizumab (Tysabri) and fingolimod (Gilenya) have also been associated with headaches

Common triggers that can set off both MS symptoms and migraines include stress, fatigue, poor sleep, dehydration, and changes in weather.

It's always worth mentioning migraines to your neurologist, especially if they worsen after starting a new medication, so they can help find the best way to manage them.

June 13

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