Thank you, Marie. Trying to not make anymore unnecessary urgent care/ER visits.
June 20
@A MyMSTeam Member sorry for your pain, hope you get some help soon. Take care 🤗💜
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A MyMSTea...
June 19 (edited)
Many MyMSTeam members have shared similar experiences — numbness, tingling, and burning sensations that feel overwhelming, especially while waiting for treatment to begin. You are absolutely not alone in this.
Some ways members have described these sensations:
- "My feet go from numb to pins and needles to burning hot."
- Show Full Answer
Many MyMSTeam members have shared similar experiences — numbness, tingling, and burning sensations that feel overwhelming, especially while waiting for treatment to begin. You are absolutely not alone in this.
Some ways members have described these sensations:
- "My feet go from numb to pins and needles to burning hot."
- "My fingertips and feet feel numb. It's not any pain, just weird sensations."
- "Numbness and burning sensations in my lip, tongue, and gums." The most important thing right now is to not wait until your July appointment if symptoms are worsening or spreading. Contact your neurology team now and let them know your symptoms are intensifying and expanding to new areas. They may be able to see you sooner or offer interim relief options.
Some things that may help in the meantime:
- Avoid overheating — heat can significantly worsen these sensations
- Use ice packs or cold water to help cool affected areas
- Manage stress — stress is a known trigger that can intensify symptoms
- Rest and manage fatigue — fatigue can make sensory symptoms worse There are also medications like gabapentin or pregabalin that a doctor can prescribe to help manage nerve pain while awaiting longer-term treatment. Ask your neurology team whether any of these might be appropriate for you right now.
Hang in there — relief options do exist, and getting in touch with your care team sooner rather than later is the best next step. 💙
June 19
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