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I was on the phone with my mom yesterday. We were talking about the weather. I told her I can't go outside because it'll make me sick. She said "Use it or lose it". It made me mad and sad. Using that term when it's not about losing it and not acknowledging it doesn't have to do with that is very ignorant.
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Many community members with MS connected over the frustration of hearing 'use it or lose it,' sharing how well-meaning comments from family... Read more
And yet I still receive some others' comments and very behavior as an attack sometimes.
It feels like folks just forget that I was blind for awhile, or couldn't raise my left arm.
I know I shouldn't let others words affect me, but they still often do😅
Reality is that some things/tasks might be taken away from us. I think they are reminding us of that. What they don’t understand is that sometimes the timing of the circumstances don’t align with our MS. I have days of fatigue and dread simple household tasks. I keep telling myself that if the day comes and I can no longer do my on laundry for example, I want to be a some sort of peace, knowing I didn’t give up.
@A MyMSTeam Member you are right about Generation X, we were always told to stay outside, rub dirt in it when you got hurt and never came home except for dinner then outside again until the street lights came on. I call it free range children.
She sounds like a Gen X kid. That's what we were told about life. Figure it out. Use it or lose it. It's not always a put down. Like, if you don't do things while you, your apt to lose the ability to do so.
I'm a Gen X. This is how we were raised. But it was mostly applied to using our brains.
Don't over think it. If it bothers you that much, ask her what she meant by it. Sounds like something I'd say. Don't get your panties in a bunch. That's what I told me 3 boys. I'm Gen X, BTW.
Remind the same people that the same thing applies to Compassion/empathy ..use it
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