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A MyMSTeam Member asked a question 💭
London, UK

Ice had 4.5 month relapse. I don't know where relapse ended and recovery started but I have got better. Is it normal for symptoms to ease then come back and then go away for longer then come back and each time they go away it is for longer in MS relapse? Tonight I have lost all fight. In pain worse since two months ago. I feel like im back at the beginning. Please please help me? Am u in recovery?

July 7
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MyMSTeam

It sounds like you're navigating the ups and downs of relapse recovery, with symptoms that seem to cycle or fluctuate — including trigeminal neuralgia (TN). That's a lot to deal with, and it makes sense to want to understand what's happening.

During recovery from a relapse, symptoms don't always improve in a straight line Show Full Answer

It sounds like you're navigating the ups and downs of relapse recovery, with symptoms that seem to cycle or fluctuate — including trigeminal neuralgia (TN). That's a lot to deal with, and it makes sense to want to understand what's happening.

During recovery from a relapse, symptoms don't always improve in a straight line. They can fluctuate, temporarily worsen, or shift over time. This is normal, though it can feel unsettling.

A few things that can cause symptoms to temporarily spike during recovery include:

- Overheating or physical exertion
- Emotional stress
- Infections
- Fatigue or overexertion

These temporary worsening episodes are called pseudo-relapses and usually resolve within 24 hours once the trigger is addressed. Regarding trigeminal neuralgia (TN), it is a known comorbidity of MS and can be particularly painful. As one MyMSTeam member described it, "It is truly the worst pain I have ever experienced." TN pain can come in short bursts lasting seconds to minutes, or as a longer, more spread-out ache.

During remission, symptoms like TN may ease, but recovery timelines vary from person to person. Rest, pacing yourself, and working closely with your neurologist are key.

If symptoms feel severe or aren't improving, don't hesitate to reach out to your healthcare team promptly.

July 7

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