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Had head and neck MRIs not even suspecting MS—we were examining for other issues. So I was diagnosed incidentally; MS wasn’t on the radar. I am so absolutely overwhelmed and devastated.

July 23
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Reactions
A MyMSTeam Member

Oh sorry you get to join the club , You will be OK , it's not fatal , Takes a lot of getting used too but you will , get on a treatment as it's all about prevention , eat as healthy as you can (great for MS and general health) , watch for the depression (tends to effect many people after diagnosis) .Any questions feel free to reach out

July 23
A MyMSTeam Member

One day at a time, give yourself grace. Sending you love, @A MyMSTeam Member!

July 24
A MyMSTeam Member

I remember when I was dxd. When the neurologist told me and my late wife it was MS, Lisa cried and I asked "What do we do next?". Dr said I had a good disposition and would do well with it. That was over 26 years ago. I felt a little at ease when I found out that only 15 % become wheelchair bound. Good odds I thought. Anyway, I started Copaxone immediately. I've been leading a fairly normal life...working and getting about with only annoyances from my RRMS. Like others have said, it's not fatal and sorry you're in our club 😉

My advise is to live your life as you would normally. Don't worry about things until you have to. Also, wish ya all the best and you're in great company with this site. 😃

July 24
A MyMSTeam Member

@A MyMSTeam Member, sorry for your diagnosis. It’s hard - you have a lot to process right now and it takes time. We are here for you 🤗💜

July 23
MyMSTeam

First — take a breath. What you're feeling right now is completely valid. Being blindsided by an MS diagnosis is a lot to absorb, and feeling scared, devastated, and overwhelmed makes total sense. There's no "right" way to react to this.

The shock of an unexpected diagnosis can feel like the ground has shifted beneath you Show Full Answer

First — take a breath. What you're feeling right now is completely valid. Being blindsided by an MS diagnosis is a lot to absorb, and feeling scared, devastated, and overwhelmed makes total sense. There's no "right" way to react to this.

The shock of an unexpected diagnosis can feel like the ground has shifted beneath you. That's real, and it deserves to be acknowledged. Here's something that might help right now — you don't have to figure everything out at once. Seriously. Experts who work with MS patients say it can take one to two years to feel comfortable navigating this new reality. Give yourself permission to not have all the answers today.

A few gentle steps that can help in the early days:

- Let yourself feel it — grief, anger, fear — all of it is a normal part of adjusting
- Lean on your neurologist — they can be your filter when information feels overwhelming
- Build a support system — even one person who just "gets it" without needing a long explanation can make a huge difference
- Take small, concrete steps — like organizing your medical paperwork or writing down questions for your doctor As one MyMSTeam member put it, adjusting to MS is a process of grieving, and everyone moves through it in their own time. There's no comparing your journey to anyone else's.

You are not alone in this — not even close. 💙

July 23

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