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My symptoms, since coming home from the hospital 1 month ago after a cranial nerve 3 palsy attack, have gotten worse if not new. For the last 2 weeks, the left side of my face has constant rippling muscle contractions and smirked up. My speech is also starting to studder. I cannot find anyone that takes my insurance. Even after spending over an hour a few times on the phone with my insurance. They sent me a list of doctors, I called them "um, we don't take that insurance, sorry." The stress of… read more

July 25
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A MyMSTeam Member

I FOUND A PRIMARY DOCTOR AAAAAAAND NEUROLOGIST!!!!!!! I see one tomorrow and the neuro in Aug!!!!

July 28
MyMSTeam

First, the worsening and new symptoms being described — facial muscle contractions, facial drooping, and stuttering speech — are serious and need urgent medical attention. Please consider going to an emergency room right away, especially given these are new or worsening neurological symptoms. Don't wait on the insurance Show Full Answer

First, the worsening and new symptoms being described — facial muscle contractions, facial drooping, and stuttering speech — are serious and need urgent medical attention. Please consider going to an emergency room right away, especially given these are new or worsening neurological symptoms. Don't wait on the insurance situation to get evaluated. On the insurance side, this situation is unfortunately more common than it should be, and it's completely valid to feel frustrated. Here are some steps that may help:

- Request an out-of-network exception — because no in-network specialists are available, your insurance may be required to cover an out-of-network neurologist at in-network rates. Call and specifically ask for this.
- Ask your insurance for a "gap exception" — this is a formal request when their network can't meet your medical needs.
- Get your primary care doctor involved — they can write a letter of medical necessity and advocate directly with the insurance company on your behalf.
- Contact the National Multiple Sclerosis Society — they have resources and appeal letter templates to help navigate exactly this kind of situation.
- File a formal appeal — if coverage or referrals are being denied, you have the right to appeal that decision in writing. A MyMSTeam member once shared, "Appeals are always worth a try. I have won the appeals I filed." It can feel overwhelming, but pushing back does work sometimes.

Please prioritize getting seen medically first — the insurance battle can be fought alongside that, not instead of it. 💙

July 25
A MyMSTeam Member

That’s great @A MyMSTeam Member

July 28
A MyMSTeam Member

The week stay in the hospital and ambulance, er were handled beautifully by my insurance. Its just the Dr's now.

July 25
A MyMSTeam Member

So pleased for you @A MyMSTeam Member 🤗💜

July 28

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Oxnard, CA

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