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July 31
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Answer Summary

A member shared their overwhelming journey seeking an MS diagnosis after 15 years of progressing symptoms, with minimal white matter findings... Read more

A member shared their overwhelming journey seeking an MS diagnosis after 15 years of progressing symptoms, with minimal white matter findings causing confusion and frustration. Several members encouraged self-advocacy, including requesting both brain and spine MRIs, asking about a spinal tap for confirmation, and seeking a second opinion. A recurring theme was emotional solidarity, with the community reminding the member that symptoms matter, they are not alone, and that even small steps like gentle exercise, mental health focus, and holistic support are worth exploring.

A MyMSTeam Member

My diagnosis seemed to take forever, sorry you are dealing with this and with MS! I hated the testing, the drs visits, the well it could Be’s! Hopefully the drs will figure it out soon and get you a treatment plan!

July 31
A MyMSTeam Member

So were you officially diagnosed with MS?

August 13
A MyMSTeam Member

Thank you. The Dr is a Neurologist and a Professor at a University. Her specialty is MS. While I respect her knowledge I do not agree as I am not a “Text Book”. There are exceptions to every rule. I question why she omitted a scan and Radiology report

August 1
A MyMSTeam Member

@A MyMSTeam Member What does he really know about MS? He should know that every sclerosis on your brain or spinal cord will affect some part of you, some minimally, some serious. Your symptoms are Important! I totally agree with Tiffany, @A MyMSTeam Member, ask gently for a second opinion, a definite diagnosis, and assistance for your symptoms.
Go Girl - advocate for yourself! And remember we are here to support you.
Much love and a big figurative hug! xxxx

August 1
A MyMSTeam Member

@A MyMSTeam Member it is very overwhelming. Have you had a spinal tap? That was what confirmed my diagnosis. Get a second opinion from a different doctor if you can. Please don’t stop advocating for yourself. It’s exhausting but worth it !!

July 31

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