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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 1
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Answer Summary

Members rallied around the question of what to do when a prescribed medication causes unbearable side effects, with the overwhelming advice... Read more

Members rallied around the question of what to do when a prescribed medication causes unbearable side effects, with the overwhelming advice being to speak up, advocate for yourself, and not feel obligated to keep taking something that makes you feel worse. Several members shared personal experiences stopping medications cold turkey or after a trial period, then working with their doctors to find better alternatives, with Ocrevus mentioned by multiple members as a well-tolerated option that helped prevent new lesions. A recurring theme was that patients have the right to refuse or stop any medication, and seeking a second opinion or MS specialist is a valid and empowering choice.

A MyMSTeam Member

Phillip Segui, I use only what I feel helps me, nothing more. I agree with you 💯 percent.

August 11
A MyMSTeam Member

Definitely stop taking it Cheryl and research a new medication. I cannot tell you how many times I've had to go through this although I must say the doctors were very Cooperative in the process.

August 21
A MyMSTeam Member

@A MyMSTeam Member , like I had previously mentioned ‘I stopped mine and immediately messaged my Dr to let him know’ he tried to convince me to stay on it but I said ‘I don’t want to add more misery to my situation’

August 19
A MyMSTeam Member

You use and then tell me if you want to keep using it. Listen you have 100% the right to refuse whatever medication its your body never let someone dictate what medical drugs you need to take.

August 11
A MyMSTeam Member

This is your decision to do the Doctors Medicine or not!

August 5 (edited)

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