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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 6
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A MyMSTeam Member

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August 6
A MyMSTeam Member

Not on Ocrevus, the iron deficiency anemia i suffered was from 2016-2018, 8 years before I finally got diagnosed. My ferritin and hemoglobin levels were 4 something each-those levels made my bones hurt though. The pain was such a weird, freaky feeling and I'm like, 'wait a minute! I'm taking vitamin D now, i eat plenty of beef, spinach, green leafy vegetables throughout the week, I shouldn't be anemic like my one of sisters!' Apparently, I was. Right now, my hemoglobin and ferritin levels are around 11-12; they should be higher-I firmly believe there's something else going on inside my body that keeping it at these levels.

August 6 (edited)
A MyMSTeam Member

I don’t take Ocrevus , sorry

August 6
MyMSTeam

That sounds really tough to be dealing with on top of everything else. Some MyMSTeam members on Ocrevus have reported concerns around blood-related side effects, and it's worth knowing there is a connection worth discussing with your neurologist.

Ocrevus works by targeting B cells in the immune system to help slow MS Show Full Answer

That sounds really tough to be dealing with on top of everything else. Some MyMSTeam members on Ocrevus have reported concerns around blood-related side effects, and it's worth knowing there is a connection worth discussing with your neurologist.

Ocrevus works by targeting B cells in the immune system to help slow MS progression. However, in rare cases, some MS medications have been linked to a condition called autoimmune hemolytic anemia, where the immune system mistakenly destroys red blood cells (RBCs).

Here's what's known about MS treatments and these blood-related concerns:

- Rarely, certain MS medications have been associated with autoimmune hemolytic anemia
- If your bone marrow is depleted of iron, it may affect your body's ability to produce enough healthy RBCs
- Symptoms like extreme fatigue, brain fog, and tingling can overlap with both MS symptoms and anemia, making it tricky to identify the cause

It's really important to let your neurologist know about both the iron depletion and hemolytic concerns as soon as possible. They may want to run blood tests and review whether your current treatment plan needs adjusting.

Please don't stop or change your Ocrevus dosage without speaking to your doctor first, as some MS medications need to be carefully managed to avoid triggering a relapse.

August 6

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