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Recently diagnosed with demylenation after years of being told I had syringomyelia and neuro who ignored symptoms not matching fully. Original doc 14 years ago found syrnix and 2 lesions in cerebrum. Other neuro focused on syrnix but one didnt like look of the 2 brain lesions. 9 years ago ignored, 4 years ago dismissed and in Nov radiologist found what was visible in 2022 had they been told the actual complaint. Now im just working to find a proper neuro who listens and doesn't think a… read more

August 11
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A MyMSTeam Member

I haven't but I found this "Many patients managing central vestibular symptoms find that precision tinted lenses offer noticeable relief by muting the visual "noise" that can aggravate brainstem-related dizziness.Because the pons houses the vestibular nuclei and pathways responsible for your Vestibulo-Ocular Reflex (VOR), damage here from lesions or FLAIR changes can alter how your brain coordinates eye movements with your balance system. This disruption frequently causes the horizon or environment to bounce, shimmy, or wobble—a symptom clinically known as oscillopsia or visual vertigo."

August 16

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