Powered By
I have tumors in brain,tumors on spine that are inoperable. They did all scans well the radiologist read them wrong. I had a specialist read my scans to look at the scan.then they had 3 different radiologist and then they came to a meeting they all shared their finding. All of them said its clearly MS. So now im traveling 6 hours to see a great neurologist. They even filed their own documents. Then said to my lawyer file medical lawsuit for pt neglect and pt abuse. I dont like to. But they… read more
I do suffer with brain shrinkage. I big percentage. They found it when I was passing out so much, broke teeth,lost fillings. The thing I cant figure out, how did 6 other between radiologist and specialist. I could see missing it once or twice. But it happened several times. So the brain shrinkage showed up with the bilateral basal ganglia calcification. In a year it doubled..im a retired and disabled nurse. Because I always an advocate for families. Listened to their frustration, then would speak with md regarding their concerns. I blame it mostly on how quick they mandated time visits.
I still have now the grandparents talk to me about how nurses have changed.i put over 40 children in one day, did the vaccines, also did phone triage and took phone calls and also did all prior authorizations then I would make the appt. Now its all they do is get an approval but its a separate from the drs..its the registration that does it. How can they tell how bad the reason for the referral. With my memory loss I dont remember who they said to call. But if the office called you would get in sooner. Im just so frustrated. That people dont understand different issues, no one's MS is the same. You dont need leaions to be dx with MS.
What you've been through sounds incredibly exhausting and frustrating — 16 years of unanswered questions, being dismissed, and losing so much. That takes real strength to keep pushing forward, and getting that second (and third, and fourth!) opinion was absolutely the right move.
The "electric fence" sensation you describe Show Full Answer
Join
Your Privacy Choices
