Starting treatment after a diagnosis is a big step, and it's completely normal to have questions and feel a mix of emotions about it. Many MyMSTeam members are on Tysabri (natalizumab) and have shared their experiences.
Tysabri is given as an IV infusion every four weeks, so you'd be visiting an infusion center once a Show Full Answer
Starting treatment after a diagnosis is a big step, and it's completely normal to have questions and feel a mix of emotions about it. Many MyMSTeam members are on Tysabri (natalizumab) and have shared their experiences.
Tysabri is given as an IV infusion every four weeks, so you'd be visiting an infusion center once a month. Here's what to generally expect:
- The infusion itself is administered at an infusion center, doctor's office, or hospital
- Staff will monitor you during the infusion for any reactions or side effects
- Some members have described their first infusion as smooth and even painless
- Many members feel hopeful and positive about their infusion treatments One important thing to be aware of with Tysabri is the JC virus. Tysabri can suppress parts of the immune system, which in some cases can allow the JC virus to become active and potentially cause a serious brain infection called PML. Your neurologist will likely monitor your JC virus antibody levels through blood tests every six months while you're on Tysabri.
It's really important to have open conversations with your neurology team about any concerns, and to report any new or unusual symptoms during treatment.
One MyMSTeam member shared a helpful mindset: planning ahead for treatment days by taking time off and giving yourself "space and grace" to recover. Starting treatment is a positive move toward managing your MS! 💪
August 14
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