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I know everyone is different, but I am just wondering! I read most of the time it happens between the 15 year to 20 year mark. It has been 15 years now since my first bout of Optic Neuritis, and then developed other issues ,but I was only diagnosed in 2025 . I am not sure if I should consider the length of time on the diagnosis date or when my first obvious symptoms occurred ? I also am aware that some people always remain in the RRMS phase , and their ms calms down as they age.
Answer Summary
Members responding to the question about transitioning from RRMS to SPMS shared their personal timelines, with most falling in the 15 to 25... Read more
Hi Tiffany,
I was initially diagnosed with multiple sclerosis in 1999. I had spasms in my right leg and I ended up going to see a neurologist who told me I had MS After doing a brain scan. Couple weeks later the symptoms went away , no more symptoms at all. I contacted another neurologist at UCLA and he looked at my brain scan and said you don't have any more lesions than anyone I don't think you have ms. 25 years ago they didn't bother to check spine MRIs which is where my lesions were probably already active..
Fast forward 25 years, all of a sudden I was tripping over things that never would have been an issue in the past. My wife insisted I see a neurologist. After several visits I was diagnosed with secondary Progressive ms. In retrospect I had had things going on for years I didn't recognize as MS symptoms. I attributed them to injuries that I had had, and aging. I was diagnosed in December of 2025 and I'm doing a lot of things right now including DMT's and peripheral stimulators in my back to cut down pain. I can't go back to doing racquet Sports I played a lot of tennis and then later pickleball but those days are done. My hope is that I will be able to play golf after some physical therapy once my back is feeling better. Don't give up, there's a lot of Life to Live.
Joe
I haven't had a relapse for a long time but I'm on Ponvory which is supposed to reduce the number and frequency of relapses so it's difficult to know if this DMD is working well or if I'm transitioning to SPMS or maybe both.
How do we know when we transition from RRMS to SPMS?
I am 23 years in still walking, and I haven't progressed further. No DMTs meds either.
@A MyMSTeam Member is there anyway physical therapy could help you with the issues you are experiencing?
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