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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I now have black holes in your brain. Does this happen in the SPM?

A MyMSTeam Subscriber asked a question 💭
August 27
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Which MS Drugs Are Approved To Treat Secondary Progressive MS? Read Article...
A MyMSTeam Member

From what I understand, it can happen in any stage and is caused when you have severe inflammation and a spot stays inflamed for more than 6 months, and then it causes a permanent tissue death in that spot .

August 27
A MyMSTeam Member

Hmm... not sure about that. Check with your dr.

And CONT FREAK OUT!

If an AREA is bothering you. Massage it.
Accupuntcure maybe?

What you read here does NOT MEAN it will happen to you.

Thankfully I've had MS for 26 YEARS and have NOT been perfect however I am still walking talking and laughing.

(No. Not at my haircut. That's another story!)

Please try to stay purposeful in your actions and loving to yourself.

If your 'anything' doesn't feel RIGHT .. TELL YOUR DR. (Neuro)

You'll be fine @A MyMSTeam Member

Believe it and you WILL SEE IT.
😘

Amy

August 29 (edited)
MyMSTeam

It sounds like you're asking about black holes in the brain and whether they occur in Secondary Progressive MS (SPMS) — that's a really important question.

Yes, black holes can occur in MS, including SPMS. They are areas of permanent tissue damage visible on MRI scans, often representing older, more severe lesions where Show Full Answer

It sounds like you're asking about black holes in the brain and whether they occur in Secondary Progressive MS (SPMS) — that's a really important question.

Yes, black holes can occur in MS, including SPMS. They are areas of permanent tissue damage visible on MRI scans, often representing older, more severe lesions where nerve fibers have been significantly damaged or destroyed. In SPMS, the disease causes ongoing nerve damage over time, even without obvious relapses. This is sometimes called "smoldering inflammation." As a result, lesions can evolve and some may become black holes, reflecting accumulated damage.

Here's what's important to know:

- Not all lesions become black holes — some remain as less severe scarring
- Black holes are associated with more permanent disability
- Your neurologist will track these on MRI scans over time to monitor disease progression

It's really worth having a detailed conversation with your neurologist about what these black holes mean specifically for your situation and how they might influence your treatment plan going forward.

August 27

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