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A MyMSTeam Member asked a question πŸ’­
Lincolnton, NC

My neurologist said it is rare to be diagnosed at 59. Symptoms I have I now know began years ago. I still have three more MRIs and a spinal tap scheduled for November. Any thoughts on the diagnosis age?

7 hours ago
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A MyMSTeam Member

I was diagnosed on my 53rd birthday.

5 hours ago
A MyMSTeam Member

I brushed off so many symptoms and got diagnosed at 49.

6 hours ago
A MyMSTeam Member

Also, you may have experienced early symptoms and brushed them off not knowing. Good luck, @A MyMSTeam Member! πŸ€—

7 hours ago (edited)
A MyMSTeam Member

I don’t know if it is rare but it is called Late Onset Multiple Sclerosis. Best of luck to you

7 hours ago
MyMSTeam

Your neurologist is right that a later diagnosis is less common, but it's definitely not unheard of. An MS diagnosis at age 50 or later is called late-onset MS (LOMS), and the average age of LOMS onset falls between 53 and 67 β€” so 59 actually fits right in that window.

Here are a few key facts about late-onset MS:

- LOMS Show Full Answer

Your neurologist is right that a later diagnosis is less common, but it's definitely not unheard of. An MS diagnosis at age 50 or later is called late-onset MS (LOMS), and the average age of LOMS onset falls between 53 and 67 β€” so 59 actually fits right in that window.

Here are a few key facts about late-onset MS:

- LOMS represents between 0.6% and 12% of total MS cases
- Diagnosis after age 60 is considered very late-onset, accounting for only 1% of cases
- Interestingly, while MS generally affects more women than men, LOMS is actually more common in men It's also very common to look back and recognize symptoms that were there years earlier. Research shows that many people with MS experience symptoms well before their official diagnosis β€” sometimes those early signs go unrecognized for a long time.

A MyMSTeam member shared a similar experience, noting it took 19 years to get their diagnosis, with symptoms starting at age 16.

The upcoming MRIs and spinal tap are important steps β€” since no single test confirms MS, neurologists typically piece together results from multiple tests to reach a diagnosis. Hang in there β€” November will bring more clarity! πŸ™

7 hours ago

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