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No medication yet, im assuming this is what we'll discuss

October 7
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A MyMSTeam Member

Writing a list of questions helps me remember. Trying to take notes when I'm there is helpful too.
Then I research the shit out of it.

October 8
A MyMSTeam Member

Hey, they will most probably ask about your symptoms, they could do tests to see how you walk and to check your manual dexterity of your hands. I think this is called a 9 hold peg test, I think the walking test is called to get an EDSS score which you can Google.

They may discuss treatment options but I think this may be down to a Neurologist to talk to you about that.

They may also give you leaflets to read to give you abit more information, these may include the type of MS you have, financial support and also different sign posting and support available to you.

I hope it goes well for you, just be yourself and be honest about everything you are experiencing, it might also be helpful if you took someone with you for support.

October 8 (edited)
A MyMSTeam Member

@A MyMSTeam Member Foyle I would also ask about local MS Groups where you can get together and socialise. A chronic condition like MS can become quite isolating... As before, I am just down the road, with 32 years 'experience' (Email address can only be seen by the question and answer creators)

October 7 (edited)
MyMSTeam

How exciting (and maybe a little nerve-wracking) — a first neurology appointment is a big step! It's a great opportunity to get clarity on your MS and start building a care plan that works for you.

Here's what to expect and bring along:

What to bring
- A written list of all your current symptoms, even ones that seem minor
- Show Full Answer

How exciting (and maybe a little nerve-wracking) — a first neurology appointment is a big step! It's a great opportunity to get clarity on your MS and start building a care plan that works for you.

Here's what to expect and bring along:

What to bring:
- A written list of all your current symptoms, even ones that seem minor
- Notes on when symptoms started or changed
- A list of any medications or supplements you're currently taking
- Any previous test results or medical records if you have them
- A trusted friend or family member if possible — they can help take notes and remember details

What will likely be discussed:
- Your symptoms and how they're affecting daily life
- Your MS history and progression so far
- Treatment options, including disease-modifying therapies (DMTs)
- Next steps for managing your MS Starting a journal to track symptoms before the appointment is a tip many people with MS find really helpful. As one MyMSTeam member shared, keeping notes means you won't forget anything important when the moment comes.

Don't be shy about asking questions — no question is too small. This is your health, and building a good relationship with your neurology team is so worth it!

October 7

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