Bowel dysfunction is incredibly common with MS β up to 70% of people living with MS experience it, so you are definitely not alone. Constipation tends to be the most frequent issue, though some people deal with incontinence, diarrhea, or a frustrating mix of all three.
A MyMSTeam member described their bowel issues as Show Full Answer
Bowel dysfunction is incredibly common with MS β up to 70% of people living with MS experience it, so you are definitely not alone. Constipation tends to be the most frequent issue, though some people deal with incontinence, diarrhea, or a frustrating mix of all three.
A MyMSTeam member described their bowel issues as "constant," and another shared that on bad fatigue days, their bowels would "leak." It can really affect quality of life, and it's completely valid to feel frustrated by it. Seeing a GI specialist and doing pelvic floor therapy β like you already are β are two of the most recommended approaches. Pelvic floor therapy in particular is considered a bit of a hidden gem for MS-related bowel, bladder, and pelvic issues. It goes well beyond basic exercises and can help retrain muscles that have weakened or are in spasm.
Beyond those, here are some additional strategies that may help:
- Hydration β Aim for at least 48 oz (6β8 glasses) of water daily to keep things moving
- Fiber intake β Fresh fruits, vegetables, and whole grains can add bulk and soften stool
- Bowel training β Trying to go at the same time each day can help regulate the body
- Physical activity β Even gentle movement can support digestion
- OTC options β Stool softeners or Miralax are commonly used; a MyMSTeam member shared that taking stool softeners twice daily along with Miralax "works pretty well"
- Positioning β A small footstool to prop your feet while on the toilet can make bowel movements easier and reduce straining It's also worth noting that some MS medications, particularly opioid pain relievers, can worsen constipation. If that applies, it's worth raising with your doctor to see if adjustments can be made.
It sounds like you're already taking great steps by working with both a GI specialist and a pelvic floor therapist β that combination is really the gold standard approach!
October 14