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A MyMSTeam Member asked a question πŸ’­
Duarte, CA
October 18
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A MyMSTeam Member

From Diane The Bears 🐻 🌭🍺

October 18
MyMSTeam

Yes, middle ear myoclonus (MEM) is something that some people with MS do experience, though it's considered rare. It happens when muscles in the middle ear contract repeatedly, creating a clicking or tapping sound β€” sometimes described as resembling Morse code. A MyMSTeam member described it this way: "It feels like my ear Show Full Answer

Yes, middle ear myoclonus (MEM) is something that some people with MS do experience, though it's considered rare. It happens when muscles in the middle ear contract repeatedly, creating a clicking or tapping sound β€” sometimes described as resembling Morse code. A MyMSTeam member described it this way: "It feels like my ear muscle has gone into spasm. Hence the 'Morse code' sound, which is driving me nuts!" Another member shared something similar, noting a "clicking, rhythmic tapping in one ear only" that comes and goes. In MS, MEM is believed to be linked to lesions that affect how the ear muscles function. These lesions are caused by demyelination β€” when the protective covering around nerves gets damaged β€” which can disrupt signals between the nerves and the brain.

Here are a few important things to keep in mind:

- A sudden change in hearing or new tinnitus symptoms could signal an MS flare
- If this is a new symptom, it's worth reaching out to your neurologist
- There are therapies available that can help manage tinnitus, including tinnitus retraining therapy and cognitive behavioral therapy

October 18

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