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I have come across a few posts on here as well where people have been misdiagnosed. Sometimes I wonder about this . This happens in 1 in 5 people

October 20 (edited)
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Answer Summary

Members discussed the topic of MS misdiagnosis after Christina Applegate's announcement, with most feeling confident in their own diagnoses... Read more

Members discussed the topic of MS misdiagnosis after Christina Applegate's announcement, with most feeling confident in their own diagnoses due to clear evidence like spinal taps, MRIs, and strong symptoms. Several members shared that overlapping symptoms across neurological diseases make MS difficult to diagnose, and one member with a lab background explained how O-band results and the central vein sign help doctors distinguish MS from other conditions. A recurring theme was empathy for anyone facing a misdiagnosis, along with appreciation for thorough testing and the value of leaning on this community for support.

A MyMSTeam Member

I hear what you are saying, @A MyMSTeam Member, and I'm 100% in agreement with you. There are days however, that MY MS has ME! But that said, while it may be nibbling on my brain and spinal cord, it may weaken me and win some battles, but it will NOT defeat me. I will not die from this, it will be something else that takes me!

October 23
A MyMSTeam Member

I leave the unknown up to the specialists. For me not being able to move a leg no matter how hard I try to think about it, is evidence enough along with spinal tap and MRI.

October 20
A MyMSTeam Member

@A MyMSTeam Member sorry if it was long . I used to be a hospital laboratory med tech years ago. So I love to talk about stuff like that.

2 days ago
A MyMSTeam Member

@A MyMSTeam Member I get why it is confusing but Many different things cause brain lesions, I have lesions from migraines , that is one of the reasons it took so long for my diagnosis. High blood pressure , concussions etc. also cause brain lesions. The central vein sign usually helps them to distinguish if it is ms , but you can have ms and not have the central vein in every lesion

When we get a spinal tap , they also draw blood . If you have O bands in your blood and csf, if points away from MS . If you have o bands in CSF only in points towards MS . If you have both they subtract the blood number from the csf . Anything over 2 is considered positive . Christina Applegate’s was 3. The O bands just tell us how many different antibodies are being made in the CNS.

About 20% of ms patients are misdiagnosed, she just happens to be famous and it has been brought to everyone’s attention, which is a good thing . Neurological diseases are very hard to diagnose . I hope they figure out what she has . I feel bad for anyone who has health issues .

2 days ago (edited)
A MyMSTeam Member

After 5 years absolutely, at least that explained why they weren't seeing results they expected to see.

5 days ago

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