I have come across a few posts on here as well where people have been misdiagnosed. Sometimes I wonder about this . This happens in 1 in 5 people
Answer Summary
Members discussed the topic of MS misdiagnosis after Christina Applegate's announcement, with most feeling confident in their own diagnoses... Read more
I hear what you are saying, @A MyMSTeam Member, and I'm 100% in agreement with you. There are days however, that MY MS has ME! But that said, while it may be nibbling on my brain and spinal cord, it may weaken me and win some battles, but it will NOT defeat me. I will not die from this, it will be something else that takes me!
I leave the unknown up to the specialists. For me not being able to move a leg no matter how hard I try to think about it, is evidence enough along with spinal tap and MRI.
@A MyMSTeam Member sorry if it was long . I used to be a hospital laboratory med tech years ago. So I love to talk about stuff like that.
@A MyMSTeam Member I get why it is confusing but Many different things cause brain lesions, I have lesions from migraines , that is one of the reasons it took so long for my diagnosis. High blood pressure , concussions etc. also cause brain lesions. The central vein sign usually helps them to distinguish if it is ms , but you can have ms and not have the central vein in every lesion
When we get a spinal tap , they also draw blood . If you have O bands in your blood and csf, if points away from MS . If you have o bands in CSF only in points towards MS . If you have both they subtract the blood number from the csf . Anything over 2 is considered positive . Christina Applegate’s was 3. The O bands just tell us how many different antibodies are being made in the CNS.
About 20% of ms patients are misdiagnosed, she just happens to be famous and it has been brought to everyone’s attention, which is a good thing . Neurological diseases are very hard to diagnose . I hope they figure out what she has . I feel bad for anyone who has health issues .
After 5 years absolutely, at least that explained why they weren't seeing results they expected to see.