@A MyMSTeam Member maybe you can discuss your questions with your wife before her appointment and let her know your concerns and bring up things she might not think of . If she agrees with your questions then let her ask the doctor. You are husband and ofcourse you are trying to help because you love her , but these doctor appointments are limited in time and it’s really your wife’s only time to speak to her doctor. I am sure questions also arise while you are there , but wait until the end of the appointment and then ask. Just suggestions , your wife is lucky to have your support

Mentioned Users

A MyMSTea...

@A MyMSTeam Member you'll get through the process, I never said it's easy but I do say it's necessary. Having to change your life for something like this can be overwhelming but it's doable. You just have to process it and then get to work on how your going to move forward.

Mentioned Users

A MyMSTea...

I got my "clinically isolated symptom of MS" diagnosis with my mum in the room. I was 19, nearly 20, and a couple of weeks before I started a nursing degree when I got told and shown my mri images. That was a weight lifted off our shoulders, especially when a blood test I had in hospital was to rule out a differential (CADASIL), because if I tested positive for that, both mum and my estranged dad would have had to get blood tests done themselves!

My 1st symptom was simple partial temporal lobe seizures. My GP didn't believe me, but the triage nurse that saw my pupils when I had a seizure sure did! And when I got started on lamotrigine during my hospital stay when I was in for my lumbar puncture, I'd gone to my GP for a repeat prescription. The GP's face turned white when he realised I was right all along, especially with my snarky "told you so" smile 😜.

Edit: I was in my 2nd year of my nursing degree (2015) and I developed vertigo. Because currently the NHS does not share patient records between different Health Trusts, my university GPs didn't know I had a CIS diagnosis of MS. They told me I had a blockage in my euscation tubes. It wasn't until a week or so later, when I lost the feeling on the left side of my face, that I got in contact with my MS nurses. They got me an appointment practically immediately with the neurologist, who did a pinprick test, followed by an MRI at a PRIVATE hospital under the same Trust, and then started on copaxone, with a delivery of the injections, csync autoinjecter, and a letter confirming that I have RRMS, to my student house. I told my now-husband not long after I got the letter, explaining what will be happening in the future with me, using my hands to do an impromptu graph. He already knew I had CIS MS, after I had a simple partial seizure in his car and told him. He knew what to do when I had my 1st generalised seizure because he had watched me help his friend when he had a generalised when it was just us 3 walking home from a pub 😅 scared now-husband with how quickly I went from Tipsy Charlotte to sober, Emergency Charlotte that night, and me explaining what I was doing, why, and when to call 999 when we'd dropped friend off and it was just us 2 walking home. He then knew what to do when I had my 1st status epilipticus event in April 2021. He couldn't be by my side when I woke up, like he does now when I've had further events, because of COVID lockdown 🫣 so, it's great to tell people what to do in those situations. It's great when they can tell what's about to happen (had one when we were home, he watched me throw up into the toilet, got me a glass of water to rinse my mouth out, then saw my face drop like I was about to have a stroke. I've taught my carers what to do if I were to have a seizure (please Miss, I can't hear you, and I need a wee). I've even told the manager of my carers what to do, and she's put it in my notes! Ignoring the fact I've been teaching my regular carers before my catch-up.

I lost my bladder . Went to ER. Got treated like i was pain seeking (which i will never understand) i had to advocate for a neurologist.
Within 2 hrs of the 13 that i was there they said you have MS. Admitted me for lumbar punct.

I think Humira gave me this disease personally! I was fine and then i wasn't

MS manifests itself with so many alternatives…it is crazy. We can only hope for the best and take care of ourselves as best we can. Blessings to everyone through their MS journey.