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A MyMSTeam Member asked a question πŸ’­
Portland, OR

I take anti-convulsant meds along with Gaba Pentin and of course they don't erase it. I have to talk for a living and there are many hours that I can't. I will eat raw snakes if I have to. Any suggestions?

October 23
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A MyMSTeam Member

Trigeminal neuralgia is just the worst pain! I took carbamazapine and gabapentin, still hurt like crazy! My best wishes to you both @A MyMSTeam Member
@A MyMSTeam Member. πŸ’œ

October 25
A MyMSTeam Member

Thank you. I am on the same drug you are and it works,,,, sometimes. Hang in there, you are not alone.

October 25
A MyMSTeam Member

Oh gosh, its the worst isnt it. The pain in the jaw, temple and face can be unbearable at times.

I was prescribed carbamazapine for it but it didn't have much effect. I wish I had a magic remedy for you, if you find one in the meantime please let me know πŸ™‚

October 24
MyMSTeam

What are the best options for managing trigeminal neuralgia (TN) when anticonvulsants and gabapentin aren't fully controlling the pain?

First, raw snakes are off the menu β€” but there are some real options worth exploring with your neurologist. Since talking triggers pain and it's your livelihood, getting this under better Show Full Answer

What are the best options for managing trigeminal neuralgia (TN) when anticonvulsants and gabapentin aren't fully controlling the pain?

First, raw snakes are off the menu β€” but there are some real options worth exploring with your neurologist. Since talking triggers pain and it's your livelihood, getting this under better control is genuinely urgent. Here are some approaches that may help beyond what you're already taking:

Medication Adjustments
- Adding a muscle relaxant like baclofen alongside your current medications may boost their effectiveness
- Pregabalin (Lyrica) or lamotrigine (Lamictal) are alternatives worth discussing if not already tried
- Topical options like Voltaren gel applied along the cheekbone have helped some MyMSTeam members

Procedural Options
- Gamma knife radiosurgery is commonly used for MS-related TN β€” it's considered safe and effective, though pain relief may not be permanent for everyone
- Microvascular decompression (the Jannetta procedure) places padding between a blood vessel and the trigeminal nerve, if compression is the cause

Mental Health Support
- TN with MS significantly increases anxiety and depression risk. A psychotherapist specializing in chronic pain can help manage the emotional toll, especially when it's affecting your work. Since your ability to speak is directly impacted, it's worth having an urgent, focused conversation with your neurologist about procedural options. Medication alone may not be enough, and there are surgical paths that could offer more meaningful relief.

October 23

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