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Top 10 Search Results for "Extavia"

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Question On Heat Sensitivity

Question On Heat Sensitivity

Im not diagnosed but have gone through mris which were normal, ssep, bloods ect. When i get overly hot by a shower or the weather just a small spot on my heel tingles. I have been told this is from back and disc problems. I have heard heat intensifies ms symptoms and am wondering if it manifests in this manner or if with ms it is much more severe. I dont notice the tingly spot unless I'm paying attention to it, but it still comes on with heat?

A MyMSTeam Member said:

@A MyMSTeam Member we had our baby BOY hes doing very well and is healthy!

posted over 4 years ago

Washout Period???

Washout Period???

I'm looking at swapping from Tysabri to Ritixumab does this require a washout just wondering as dr google hasnt helped?? TIA

A MyMSTeam Member said:

I was on tysabri before I was switched to Tecfidera. I had to wait three months before I could start Tecfidera.

posted almost 5 years ago

Aches

Aches

Iv got sporadic shooting pains on sole of feet, it then follows with a calf cramp, then leaves an ache , more than a pain in my ankle. Happens constantly throughout the day. Does anyone else experience this or am I just alone with this one

A MyMSTeam Member said:

Same as me I was on Tecferdira for 2 and a half years and it just stopped working for me that's why my ms team decided it was time for something stronger and that's why I was put on the lemtradaread more

posted almost 5 years ago

What Do You Think The Best MS Medication Is Out There Relapsing Form Of Ms?

What Do You Think The Best MS Medication Is Out There Relapsing Form Of Ms?

I have been on Extavia for a long time and I’m having a hard time getting it right now. They are saying it’s on back order and can’t give me a time frame of when I can get it. So I have a video conference with my dr tomorrow afternoon to determine what should be done. I see all these different medications out there now and don’t know a thing about them. Could use some input on some of them and how they effect you. Good or bad. So I can be a little prepared for my talk with the dr. Any… read more

A MyMSTeam Member said:

Dr is putting me on Tecidera. After 14 years of sticking myself with needles I’m finally going to a pill. Going to be weird.

posted about 1 month ago

MRI Results For Diagnosis

MRI Results For Diagnosis

Hi all
So I'm still in the process of diagnosis and got my MRI results today. All my neurologist had told me was it's not "obvious signs" of MS but he doesn't know what it is. Wondering if any of you might have a clue what this means LOL here's what it says exactly
"ill-defined FLAIR hypersignal involving the paraventricular white matter of the frontal and parietal lobes. No clear margin for measurement. Findings are non-specific, demyelinating process cannot be completely excluded.… read more

A MyMSTeam Member said:

Second opinion

posted almost 5 years ago

Has Anyone Ever Gotten A Bad Taste After Getting Their Injection?

Has Anyone Ever Gotten A Bad Taste After Getting Their Injection?

I've been on Extavia for a while and I could have swore I got a taste in my mouth just as my husband finished with the injection. It was like a slight reminder of what the Solu-Medrol taste like. It was givin in my right arm. First time that has happened. I've been injecting my arms since November. Weird.

A MyMSTeam Member said:

I have this via drip over 3 days and it tastes of tin foil so I drink lemon squash which helps

posted over 6 years ago

Anyone Take Extavia? Questions About Mixing And Side Effects

Anyone Take Extavia? Questions About Mixing And Side Effects

I've been on extavia for about a week and a half now. Mixing the med to make the injection is more time consuming than Copaxone. One step says to make sure the solution is completely clear but I feel like I can always see air bubbles or tiny particles. I'm worried I'm injecting something into my body that I shouldn't be! Do they mean there should be no big obvious particles?? Also, I can never get the air bubbles to float to the top. So I'm always injecting with an air bubble. The nurse said… read more

A MyMSTeam Member said:

@A MyMSTeam Member glad to hear it! I'm still on Extavia for now as I haven't progressed, luckily :)

posted almost 6 years ago

Has Anyone Switched From Betaseron To Extavia?

Has Anyone Switched From Betaseron To Extavia?

My insurance company will no longer pay for Betaseron so my doctor is switching me to Extavia. Does the larger bore needle used with Extavia hurt more? Is Extavia given in the same injection sites? I liked using the MyBeta app with Betaseron. I guess I can still use it with Extavia.

A MyMSTeam Member said:

I've been trying to find one in this area , so far no luck

posted almost 8 years ago

Positive JCV Virus And PML

Positive JCV Virus And PML

So I just tested positive for the JCV virus and I'm scared of developing the deadly PML (rare brain infection) with certain MS medications. JCV levels range from .04-6 so it’s very important to know what level you are since that increases you chances. I’m 3.31 and considering if you are 1.1 or higher, you have a 1 in 118 chance developing PML so I’m not willing to take that risk. It appears my only "safe" options are injections (interferons like @Rebif, Copoxone, betaseron, @Avonex), @Aubagioread more

A MyMSTeam Member said:

@A MyMSTeam Member Another medication I tried that you might want to consider is Gilenya, which I took prior to Aubagio. It’s also a pill you take once a day, not a shot or infusion; which also means… read more

posted almost 4 years ago

Please Help Me!!! Idk Wat 2 Do & I Don't Want Go Hospital!!!

Please Help Me!!! Idk Wat 2 Do & I Don't Want Go Hospital!!!

Thank God for waking me!!! I woke up not doin good 2day my legs feel they don't belong me, they really weak, super painful, & pain beyond unbearable!!! My right hand bawled up on me & can't open it jst like had my stroke 8 months ago!!! My body weak & I using my cane I scared fallin!!! Ugh!!! Lord Jesus please give me strength!!! I can't do dis not 2day!!!

A MyMSTeam Member said:

Big Hugs 🙏🏻

posted almost 5 years ago