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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Gilenya"

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Gilenya

Gilenya

Does anyone take Gilenya? Do you have bad side effects? Do you think it's helping you?

edited, originally posted over 6 years ago
A MyMSTeam Member said:

Thanks Timothy I sure hope it works.

posted over 6 years ago

Red Blotchs On Feet And Ankleslooks Like Bruises

Red Blotchs On Feet And Ankleslooks Like Bruises

About 6 months after my first MRI I discovered red looking blotches on my right foot then 6 months later the left foot does the same, asked MS doctor and skin specialist both said I don't know then one night after a shower I thought I saw blood on ankle bone (had just shaved my legs) grabbed the towel and nothing that was in 2011 just before my class reunion and it is still there no one knows what these are

posted over 9 years ago
A MyMSTeam Member said:

amantadine makes my legs redblotchy

posted about 9 years ago

Is It Terrible To Stop Taking Rebif Because You Tire Of The Injection Scheduled Injections.

Is It Terrible To Stop Taking Rebif Because You Tire Of The Injection Scheduled Injections.

just am really tired of Rebif. Neurologists does not want to change me away from Rebif.
Should I change Neurologists ?

edited, originally posted over 9 years ago
A MyMSTeam Member said:

Hi Glena what kind of diet are you on ? Would also like to ask what kinds of vitamins are you taking ? It's been over a month that I stopped taking rebif and I feel pretty good
I hope I am not… read more

posted over 9 years ago

Friends On Gilenya. Did You Experience Hair Loss? When Did It Stop? Did Your Hair Grow Back?

Friends On Gilenya. Did You Experience Hair Loss? When Did It Stop? Did Your Hair Grow Back?

Hey guys. I have been on Gilenya for just over 6 months. About 2 months ago I noticed that my hair was falling out. It is still falling out and every time I take a shower, I pull whole strands out of my head.
Can you tell me please... when does this stop? And will my hair grow back if I continue taking Gilanya? I'm getting scared.

edited, originally posted over 7 years ago
A MyMSTeam Member said:

Honestly, I haven't had any noticeable side effects (Dx: Oct. '16, Gilenya began Dec. '16) *except* for hair loss. I started noticing it six months ago, and it's actually worse now. Of course, I'm… read more

posted about 5 years ago

Gilenya

Gilenya

I have been on copaxone for 5 months and I am seriously thinking of switching to gilenya. Injections are a little too much for me and also I have gained over 35 pounds since I got on it. (I do exercise and watch what I eat) and also I have serious skin problem as well. I suspect these are side affects from the medicine. Do you recommend gilenya? I have an appointment with my neurologist tomorrow and want to ask him about it but I would love to know how everyone feel about the medicine first… read more

posted over 6 years ago
A MyMSTeam Member said:

Definitely have a talk with your neuro. Dr.; Gilenya has worked well for me but as we all know tolerance and performance varies from person to person.

Good luck!

posted over 6 years ago

Just Found Out Insurance Has Rebif As Non-preferred Drug. Have To Change Mefication, What About Gilenya?

Just Found Out Insurance Has Rebif As Non-preferred Drug. Have To Change Mefication, What About Gilenya?

posted over 7 years ago
A MyMSTeam Member said:

@A MyMSTeam Member Thanks for the answer. I'm going to watch and see how others respond. I'm considering changing to taking it in the morning. I always took my Copaxone shot at night. In Seventeen… read more

posted over 7 years ago

Has Anyone Had Decompression Surgery. How Did It Go For Them? Also The Actual Ms Meds. Do They Make A Big Difference?

Has Anyone Had Decompression Surgery. How Did It Go For Them? Also The Actual Ms Meds. Do They Make A Big Difference?

I've had a decompression surgery and a lot of steroids, but no real meds for MS yet. I really don't have any good walking days any more. I hope the meds for MS help my mobility. I'm so newly diagnosed, and scared that this is as good as I will get. Can someone tell me thier experience with MS meds? Im Just so ready to feel better. Even just a little better. I'm frustrated.

posted 3 months ago
A MyMSTeam Member said:

As above, started on interferon,then copaxone and now gilenya, gilenya seems to be working for me, I'm still walking so I will take that as a win

posted 3 months ago

Sebacous Cyst

Sebacous Cyst

Since having MS has anyone had or develop cyst anywhere?
I just came from the doctor because I had a gun ball size car under my armpit and another starting but not as bad. I had it drained it hurts so bad before then. To make a long story short my doctor said that since being on gilenya dealing with MS I'll probably deal with cyst. I figured as much but it no biggy if that's only big problem I have. Still alive and kicking. 😃🙏

posted about 6 years ago
A MyMSTeam Member said:

I get them, they usually come from ingrown hairs.. Not much more than a nuisance, but they do hurt!

posted almost 6 years ago