Does anyone take Gilenya? Do you have bad side effects? Do you think it's helping you?
About 6 months after my first MRI I discovered red looking blotches on my right foot then 6 months later the left foot does the same, asked MS doctor and skin specialist both said I don't know then one night after a shower I thought I saw blood on ankle bone (had just shaved my legs) grabbed the towel and nothing that was in 2011 just before my class reunion and it is still there no one knows what these are
I have been on copaxone for 5 months and I am seriously thinking of switching to gilenya. Injections are a little too much for me and also I have gained over 35 pounds since I got on it. (I do exercise and watch what I eat) and also I have serious skin problem as well. I suspect these are side affects from the medicine. Do you recommend gilenya? I have an appointment with my neurologist tomorrow and want to ask him about it but I would love to know how everyone feel about the medicine first… read more
So my doctor doesn't think that the Aubagio is being as effective if it was when I first started taking. I've been on it for about a year and a half and I'm starting to see some marked increased fatigue and cog fog and progression of my existing symptoms. So he suggested maybe coming off of the Aubagio and trying one of the other two oral meds. I would love to hear people's experiences with the two drugs. I know one of them for the first does she have to be monitored for six hours due to slowing… read more
for about a week now i've been the most miserable i think i've ever felt. the deep deep pain in my legs (from middle of spine down) has become unbearable. i can't sleep because the pain wakes me...sitting, standing.laying, heat,ice...180 mg morphine, flexeril and savella are doing absolutely nothing to help. doc has done exray of shins (about 2 months i had stress fracture in my foot and a week later a stress fracture in my shin (same leg) was found but because the pain is the same in both legs… read more
Since having MS has anyone had or develop cyst anywhere?
I just came from the doctor because I had a gun ball size car under my armpit and another starting but not as bad. I had it drained it hurts so bad before then. To make a long story short my doctor said that since being on gilenya dealing with MS I'll probably deal with cyst. I figured as much but it no biggy if that's only big problem I have. Still alive and kicking. 😃🙏