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Top 10 Search Results for "Gilenya"

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Gilenya

Gilenya

Does anyone take Gilenya? Do you have bad side effects? Do you think it's helping you?

A MyMSTeam Member said:

Thanks Timothy I sure hope it works.

posted over 6 years ago

Red Blotchs On Feet And Ankleslooks Like Bruises

Red Blotchs On Feet And Ankleslooks Like Bruises

About 6 months after my first MRI I discovered red looking blotches on my right foot then 6 months later the left foot does the same, asked MS doctor and skin specialist both said I don't know then one night after a shower I thought I saw blood on ankle bone (had just shaved my legs) grabbed the towel and nothing that was in 2011 just before my class reunion and it is still there no one knows what these are

A MyMSTeam Member said:

amantadine makes my legs redblotchy

posted almost 9 years ago

Is It Terrible To Stop Taking Rebif Because You Tire Of The Injection Scheduled Injections.

Is It Terrible To Stop Taking Rebif Because You Tire Of The Injection Scheduled Injections.

just am really tired of Rebif. Neurologists does not want to change me away from Rebif.
Should I change Neurologists ?

A MyMSTeam Member said:

Hi Glena what kind of diet are you on ? Would also like to ask what kinds of vitamins are you taking ? It's been over a month that I stopped taking rebif and I feel pretty good
I hope I am not… read more

posted about 9 years ago

Gilenya

Gilenya

I have been on copaxone for 5 months and I am seriously thinking of switching to gilenya. Injections are a little too much for me and also I have gained over 35 pounds since I got on it. (I do exercise and watch what I eat) and also I have serious skin problem as well. I suspect these are side affects from the medicine. Do you recommend gilenya? I have an appointment with my neurologist tomorrow and want to ask him about it but I would love to know how everyone feel about the medicine first… read more

A MyMSTeam Member said:

Definitely have a talk with your neuro. Dr.; Gilenya has worked well for me but as we all know tolerance and performance varies from person to person.

Good luck!

posted about 6 years ago

Just Found Out Insurance Has Rebif As Non-preferred Drug. Have To Change Mefication, What About Gilenya?

Just Found Out Insurance Has Rebif As Non-preferred Drug. Have To Change Mefication, What About Gilenya?

A MyMSTeam Member said:

@A MyMSTeam Member Thanks for the answer. I'm going to watch and see how others respond. I'm considering changing to taking it in the morning. I always took my Copaxone shot at night. In Seventeen… read more

posted over 7 years ago

Tecfidera Vs Gilenya.....any Suggestions?

Tecfidera Vs Gilenya.....any Suggestions?

So my doctor doesn't think that the Aubagio is being as effective if it was when I first started taking. I've been on it for about a year and a half and I'm starting to see some marked increased fatigue and cog fog and progression of my existing symptoms. So he suggested maybe coming off of the Aubagio and trying one of the other two oral meds. I would love to hear people's experiences with the two drugs. I know one of them for the first does she have to be monitored for six hours due to slowing… read more

A MyMSTeam Member said:

Been on Gilenya for 2.5yrs now. No needles love it.

posted almost 7 years ago

Does Anyone Else Have SEVERE Leg Pain?

Does Anyone Else Have SEVERE Leg Pain?

for about a week now i've been the most miserable i think i've ever felt. the deep deep pain in my legs (from middle of spine down) has become unbearable. i can't sleep because the pain wakes me...sitting, standing.laying, heat,ice...180 mg morphine, flexeril and savella are doing absolutely nothing to help. doc has done exray of shins (about 2 months i had stress fracture in my foot and a week later a stress fracture in my shin (same leg) was found but because the pain is the same in both legs… read more

A MyMSTeam Member said:

I have horrendous leg pain too. I've tried so many different things to help, but find that long acting morphine at night helps me stay asleep all night, and then dilaudid and Excedrin every 4 hours… read more

posted over 7 years ago

Sebacous Cyst

Sebacous Cyst

Since having MS has anyone had or develop cyst anywhere?
I just came from the doctor because I had a gun ball size car under my armpit and another starting but not as bad. I had it drained it hurts so bad before then. To make a long story short my doctor said that since being on gilenya dealing with MS I'll probably deal with cyst. I figured as much but it no biggy if that's only big problem I have. Still alive and kicking. 😃🙏

A MyMSTeam Member said:

I get them, they usually come from ingrown hairs.. Not much more than a nuisance, but they do hurt!

posted over 5 years ago