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About 6 months after my first MRI I discovered red looking blotches on my right foot then 6 months later the left foot does the same, asked MS doctor and skin specialist both said I don't know then one night after a shower I thought I saw blood on ankle bone (had just shaved my legs) grabbed the towel and nothing that was in 2011 just before my class reunion and it is still there no one knows what these are
Hi Glena what kind of diet are you on ? Would also like to ask what kinds of vitamins are you taking ? It's been over a month that I stopped taking rebif and I feel pretty good
I hope I am not… read more
Hey guys. I have been on Gilenya for just over 6 months. About 2 months ago I noticed that my hair was falling out. It is still falling out and every time I take a shower, I pull whole strands out of my head.
Can you tell me please... when does this stop? And will my hair grow back if I continue taking Gilanya? I'm getting scared.
Honestly, I haven't had any noticeable side effects (Dx: Oct. '16, Gilenya began Dec. '16) *except* for hair loss. I started noticing it six months ago, and it's actually worse now. Of course, I'm… read more
I have been on copaxone for 5 months and I am seriously thinking of switching to gilenya. Injections are a little too much for me and also I have gained over 35 pounds since I got on it. (I do exercise and watch what I eat) and also I have serious skin problem as well. I suspect these are side affects from the medicine. Do you recommend gilenya? I have an appointment with my neurologist tomorrow and want to ask him about it but I would love to know how everyone feel about the medicine first… read more
@A MyMSTeam Member Thanks for the answer. I'm going to watch and see how others respond. I'm considering changing to taking it in the morning. I always took my Copaxone shot at night. In Seventeen… read more
I've had a decompression surgery and a lot of steroids, but no real meds for MS yet. I really don't have any good walking days any more. I hope the meds for MS help my mobility. I'm so newly diagnosed, and scared that this is as good as I will get. Can someone tell me thier experience with MS meds? Im Just so ready to feel better. Even just a little better. I'm frustrated.
Since having MS has anyone had or develop cyst anywhere?
I just came from the doctor because I had a gun ball size car under my armpit and another starting but not as bad. I had it drained it hurts so bad before then. To make a long story short my doctor said that since being on gilenya dealing with MS I'll probably deal with cyst. I figured as much but it no biggy if that's only big problem I have. Still alive and kicking. 😃🙏