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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Lemtrada"

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Hair Thinning After Lemtrada

Hair Thinning After Lemtrada

Hi everyone I had lemtrada 6 weeks ago and have noticed my hair has gone very thin and seems to be coming out a lot more. Just wondering if anyone else has had this x

A MyMSTeam Member said:

I lost a fair amount of hair following the infusions. My thyroid was out of wack, and after I had it straightened out, the hair loss stopped.

posted over 2 years ago

Lemtrada Drug

Lemtrada Drug

Has been suggested by my Neurologist that I need to think about trying it. As Geleniya doesn't seem to be doing what they were hoping for. 4Yrs later. Not a lot of Information in the introduction to patients booklet. Hopefully someone can help me out with it. Whether they have or are on it, side effects etc. Anything would be appreciated . Thankyou Sincerely Gayle .

A MyMSTeam Member said:

All ur answers are on that link

posted almost 6 years ago

How Many Treatments Have You Been On So Far For Your MS?

How Many Treatments Have You Been On So Far For Your MS?

I’ve been on 2!

A MyMSTeam Member said:

3 , interferon, copaxone and now gilenya, current one the best so far cause its a pill not a needle.

posted 6 months ago

Anyone Received Lemtrada Treatment? Have Any Advice?

Anyone Received Lemtrada Treatment? Have Any Advice?

I'm currently in the process of deciding on what treatment is best and I'm contemplating lemtrada.. I'm just worried about the side effects of it.. does anyone else have any stories of their treatment or how they came to make a decision? I also wondered..I know it's a little taboo but anyone used cbd oil? A couple of ppl I know have raved about it but I feel like my body has given up working and I'm scared about what to do next or what to try can anyone advise? Thanks everyone 😘💕

A MyMSTeam Member said:

My Lemtrada infusion was May 2018 and I really do not know what to expect as of first day of treatment to current. I have had MS since 2010 and I had some knowledge of my MS personality but now… read more

edited, originally posted over 3 years ago

LEMTRADA

LEMTRADA

Six years ago I used Cytoxan for an MS treatment, My new neurologist has encouraged me to use lamtrada can I after using cytoxan?

A MyMSTeam Member said:

Absolutely you can! It's now 5 days the first year and 3 days the second year. Ideally that will be it. You can be re-treated with 3 days after a year if needed but results have been excellent with… read more

posted about 5 years ago

Relapse After Lemtrada

Relapse After Lemtrada

Has anyone had a relapse after lemtrada? I have servere head, neck and arm pain. Feel very ill right now. I'm 6 weeks post Lemtrada

A MyMSTeam Member said:

It's hard because I've felt left to it since coming out of hospital to be honest. It's pretty disappointing. I've had a lot of issues with it and my symptoms don't seem to be improving my neck is bad… read more

posted almost 5 years ago

Lemtrada Vs Tysabri

Lemtrada Vs Tysabri

I am taking Tysabri for 1 year . My mom has read abiut Lemtrafa medication. Is is apparently better than Tysabri and is aimed at healing the lesions and growing lost myelin as well as regaining lost functions. I am cinfised,because I thought Tysabri is the best medicine out there. Has anyone here taken Lemtrafa and did it help regain lost functions?!

A MyMSTeam Member said:

I. Been taking Tysabri for the last 4 mos. I been getting more relapse and side effects like headaches, numbness in legs, rashes, itching. personally, I wanna know what stops the leeches. I was told… read more

posted over 5 years ago

LEMTRADA SUCCESS STORIES

LEMTRADA SUCCESS STORIES

I am seeking Lemtrada success stories! My neurologist has started the approval process with my insurance company so in the mean time I'm doing my research wondering if the potential risky side effects are worth it. Would love to hear feedback please! Have a blessed weekend. Thanks for your help.

A MyMSTeam Member said:

Yesterday my daughter finally got some fanastatic news Lemtrada is working! Her MRI revealed that there is no new lesions, no active lesions and the swelling in brain and spinal cord has gone down… read more

posted almost 6 years ago

Has Anyone Received The New Med Lamtrada?

Has Anyone Received The New Med Lamtrada?

Lamtrada was approved by the FDA in Nov. or Dec. 2014. It's for those that have previously been on a treatment and failed.

A MyMSTeam Member said:

Lemtrada?

posted almost 6 years ago

Does Anyone Know Anything About Lemtrada Infusion Medication

Does Anyone Know Anything About Lemtrada Infusion Medication

I'm going on Monday for this infusion called Lemtrada on Monday and was told to expect the worst side effects. Infusion for one week 1st year, than 3 days 2nd year. So if anyone knows anything thing please share because I'm really concerned. Thanks

A MyMSTeam Member said:

All I can say is drink lots of water, I had my first dose 3 years ago, being set up for OCREVUS, BECAUSE I still feel me body progessing, MRI is clear and it has been for 3 years, Good luck

posted about 4 years ago