I have to sleep everyday for at least 1.5 hours and desperately need something to stop/reduce that onset of heavy head. I have tried many things like fatigue management and Modafinil which was too strong for me as it kept me up at night and when I did finally sleep I could feel my mind ticking as if I was only half asleep.
Therefore, I started Amantadine today 100mg per day. Has anyone tried this and if so, do you have any advice for me?
This was a weird one. You know how the ms neuro uses the tuning fork. But they also do hands on tests. I had this weird left ankle clonus the other day when he did the exam. He didn't use the tuning fork to test the ankle clonus just his hand. This is how they can tell you have lesions somewhere on your spinal cord or brain stem.
Here's what it is... It was a strange feeling.
I… read more
Is anyone on this and if you are have you had any side effects
My neurologist just cleared me to take rhodiola as needed to help with the fatigue. I was curious if anyone else had tried it along with their current medication and what your success was with it.
When I get tired after walking in the mall I start leaning over like the hunchback of NDame and can't pull my body back up. I also have to wear adult protection for bowel and urinary accidents.
I guess I'm going to ask about more that fatigue, but does anyone question whether or not they are just being lazy and/or feel guilty about not being able to do much, if anything. I can't findf answers from my docs. I am taking 45 mg of dexedrine and nuerontin sp? and they help a bit. I build up tolerance to meds easily cuz I;ve been on some for of many meds for 30 years. (I have bipolar II disorder, which is the lesser challenging og the the two types). I've havee ms for 10 or 11 years… read more
Hi i was recently told i have progressive ms at my last appt. i had also decided before being told that i wanted to go off my rituxan. I could tell the dr thought i was crazy but i have been on it for 2 and half years and still am progressing. Part of me is at peace with my decision and part of me is scared! Anyone else have progressive ms and not taking medicine??