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Finally got a new neuro after 5 and a half years, one visit and been offered treatment. But which one, are the risks associated with Tysabri worth it? it does look most promising?
I don't really have anyone at home to discuss it with, and most of everyone else doesn't see MS as anything more than a phantom thing I 'complain about. So any expoeriece would be appreciated, I haven't had test results back regarding JC virus yet.
I'm tempted to have the Tysabri for 2 years and then re-evaluate, but… read more
My partner became JCV positive - which increases the risk profile for Tysabri Now using Tecfidera and MS has remained stable. Occasionally forgets a dose if our daily routine changes but doesn’t seem… read more
I HAVE BEEN ON TYSABRI FOR 10 YRS AND LOVE IT! I have had NO relapses & No new lesions. Im currently looking for a new medicine. Only because your chances of getting PML increase to 8% once you've… read more
I just got sick with what looks like either a throat infection or cold virus. My lymph nodes are all swollen, my tonsils and throat are red and swollen, my head is spinning, and my right ear was ringing all night.
I already have a regular doctor appt. on Wednesday, but I am wondering if anyone can tell me what happens when you are on Tysabri and you get sick?
This is my first time being sick while on Tysabri. I know I can't get my infusion while I am sick, but do I need to call my… read more
I’ve been on Tysabri for 3+ years. About 6 months ago I started getting repeat upper respiratory infections. Every single month! I had pneumonia in April, terrible sore throat in May and sinus… read more
I was just newly diagnosed with MS on Oct. 2016. My leg went weak in June of 2016 while I had a sever case of Strep throat. MRI found lesions on my spine. I have to start medication but I am nervous. The Dr., wants to start me on @Tysabri and I have tested Negative for the JC Virus but I am wondering if I should start with @Copaxone first. The side effects of @Tysabri scare me. I have 4 lesions on my spine and I do have bands in my Spinal Fluid. I have 2-3 Lesions (white matter… read more
@A MyMSTeam Member
Wow....in my world right now you are a Unicorn. very Happy to hear that you have been on Tysabri for 9 Yrs., and your still JC negative and doing well. I just received an e-mail… read more
I have been on Tysabi since 2006. Turned JC positive several years ago. My neur says he has never heard of anyone getting PML who has been on Tysabri as long as I have. Can anyone share any information on long term Tysabri use .
I’ve just completed my second round of @Tysabri. I know it’s not a cure but I guess I thought it would help relieve some of them. I’m still dizzy, sometimes have issues with walking, and just overall don’t feel great most of the time. How do I know it’s working? Anyone else that’s taken this what did you experience? Any help would be great.