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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Tysabri"

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How Many People Are On Tysabri And If So Are You JCV Negative Or Positive?

How Many People Are On Tysabri And If So Are You JCV Negative Or Positive?

A MyMSTeam Member

Negative y’all the time. Neurologist says if it ever comes back positive, that we will change med,

Lemtrada, Tysabri, Or Tecfidera, I Can't Decide! What Do You Guys Take And What Is Your Experience Please!

Lemtrada, Tysabri, Or Tecfidera, I Can't Decide! What Do You Guys Take And What Is Your Experience Please!

Finally got a new neuro after 5 and a half years, one visit and been offered treatment. But which one, are the risks associated with Tysabri worth it? it does look most promising?

I don't really have anyone at home to discuss it with, and most of everyone else doesn't see MS as anything more than a phantom thing I 'complain about. So any expoeriece would be appreciated, I haven't had test results back regarding JC virus yet.

I'm tempted to have the Tysabri for 2 years and then re-evaluate, but… read more

A MyMSTeam Member

My partner became JCV positive - which increases the risk profile for Tysabri Now using Tecfidera and MS has remained stable. Occasionally forgets a dose if our daily routine changes but doesn’t seem… read more

Hi, I Am New To This Group. My Husband Was Diagnosed With MS And We Are Trying To Determine Whether He Should Do Ocrevus Or Tysabi

Hi, I Am New To This Group. My Husband Was Diagnosed With MS And We Are Trying To Determine Whether He Should Do Ocrevus Or Tysabi

A MyMSTeam Member

I HAVE BEEN ON TYSABRI FOR 10 YRS AND LOVE IT! I have had NO relapses & No new lesions. Im currently looking for a new medicine. Only because your chances of getting PML increase to 8% once you've… read more

Getting Sick While On Tysabri

Getting Sick While On Tysabri

Hi everyone
I just got sick with what looks like either a throat infection or cold virus. My lymph nodes are all swollen, my tonsils and throat are red and swollen, my head is spinning, and my right ear was ringing all night.
I already have a regular doctor appt. on Wednesday, but I am wondering if anyone can tell me what happens when you are on Tysabri and you get sick?

This is my first time being sick while on Tysabri. I know I can't get my infusion while I am sick, but do I need to call my… read more

A MyMSTeam Member

I’ve been on Tysabri for 3+ years. About 6 months ago I started getting repeat upper respiratory infections. Every single month! I had pneumonia in April, terrible sore throat in May and sinus… read more

Should I Take The Tysabri Infusions?

Should I Take The Tysabri Infusions?

I have been recently diagnosed with relapsing-remitting MS and considering taking the Tysabri infusions. For those of you taking it, what are your experiences? Do you feel it is worth the risk?

A MyMSTeam Member

Sheila, did you end up choosing this option? If so, would you recommend it? I’m at the threashold you were 2 years ago

Veins

Veins

Hi so I have been getting a painful sensation in my veins. I do have 6 weekly infusions. Just wondering if any1 else gets this pain.

A MyMSTeam Member

Frustrating 2 lol

Newly Diagnosed

Newly Diagnosed

Hello Everyone
I was just newly diagnosed with MS on Oct. 2016. My leg went weak in June of 2016 while I had a sever case of Strep throat. MRI found lesions on my spine. I have to start medication but I am nervous. The Dr., wants to start me on @Tysabri and I have tested Negative for the JC Virus but I am wondering if I should start with @Copaxone first. The side effects of @Tysabri scare me. I have 4 lesions on my spine and I do have bands in my Spinal Fluid. I have 2-3 Lesions (white matter… read more

A MyMSTeam Member

@A MyMSTeam Member
Wow....in my world right now you are a Unicorn. very Happy to hear that you have been on Tysabri for 9 Yrs., and your still JC negative and doing well. I just received an e-mail… read more

Anyone On Tysabri More Than Ten Years?

Anyone On Tysabri More Than Ten Years?

I have been on Tysabi since 2006. Turned JC positive several years ago. My neur says he has never heard of anyone getting PML who has been on Tysabri as long as I have. Can anyone share any information on long term Tysabri use .

A MyMSTeam Member

I have the same worries about rocketmom. Are there any meds that are a good switch from tysabri if you need to switch.

Tysabri

Tysabri

How fast do people see changes after there infusion? And what kind?

A MyMSTeam Member

@A MyMSTeam Member I get joint pain as a side effect of the Tysabri. Feels like arthritis in practically every joint. Worse the first 2 weeks arthritis terms infusion.

How Do You Know Your Treatment Is Working?

How Do You Know Your Treatment Is Working?

I’ve just completed my second round of @Tysabri. I know it’s not a cure but I guess I thought it would help relieve some of them. I’m still dizzy, sometimes have issues with walking, and just overall don’t feel great most of the time. How do I know it’s working? Anyone else that’s taken this what did you experience? Any help would be great.

A MyMSTeam Member

I didn’t really get relief from the symptoms, but they didn’t worsen!! Nor did I develop any new symptoms!!