I have taken my 3rd Tysabri infusion. No problems that I can tell, except extreme tiredness, nausea several days before all 3 treatments that I have had. But, since my 1st infusion, my upper left arm has been in pain and soreness like a toothache. At times if I move it wrong it sends a weird felling of an electric shock all the way down into my fingers. Is this something that would have anything to do with Tysabri? I actually had the infusion in the opposite arm this time… read more
I am a person that wants to do a lot-in fact I used to walk 10 miles a day! I was diagnosed a year ago. Now I cannot seem to make it past 2-3k steps without my right side going completely out. For the old schoolers who have had MS for a while, did you ever have a downturn and then bounce back to your former glory? Was the recovery in years? I am really hoping my body just needs the time to heal and I will be able to do the things I enjoy again. Feeling pretty lazy right now!
I've been having these shocking feelings In the bottom sides of my feet. I've had them in my neck and arms off and on as well. I know about the Lherimite syndrome, but it's becoming quite annoying. Also, my mood is so up and down, but I've noticed lately, ..... Hard to explain.... Like a rage building inside, but never surfaces.... Does that make any sense to anyone? Am I losing it? I know when I tell my neuro I'll hear the same thing, "probably side effects of meds", been on same meds for… read more
My bladder developed a mind of its own around the time MS was diagnosed. Meds and a lot of concentration whilst trying to make a ladylike beeline for the loo, have got me through so far with, embarrassingly, only the occasion mishap. Over a year ago my Neuro suggested it was time for me to begin ISC (Intermittent Self Catheterisation) and I was provided with everything I'd need. A few weeks later I needed surgery after a fall in which I damaged ligaments in my wrist and badly… read more
I know this is happening to me. In one post it said too high carbohydrate intake can cause it. I knew I shouldn't have eaten that heath bar ice cream lol
If you find yourself getting the necessary hours of sleep at night but still feeling like your body hasn’t rejuvenated itself, you’re likely not getting enough deep sleep. This sleep stage is responsible for healing and repairing your body, replenishing cells and revitalizing your immune system. It’s a critical stage… read more
Hey everyone! So I’m new to this but for a few years now (4) I’ve been having more and more strange symptoms. Starting with tingling and numbness in hands and feet. Then next pain in my left hand only when pushed on. Saw daughters about this and nobody ever knew. Had my second baby September 2017 and a few months after started experiencing very weird sensations and muscle weakness on my right side. Then my right eye started having itchy watery redness to it. I immediately freaked out… read more
I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.
why do I feel better as the day goes on? I don't understand it? I've asked my neurologist, she doesn't know why, my pcp doesn't understand either! Does anyone understand this, or does this happen to anyone else?
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