Maintaining independence is a concern for many people with multiple sclerosis (MS). And everyone needs a little help sometimes.

“I see the word ‘independence’ written in a lot of messages on here. ‘Independence’ is great, but you’ve got to take what help is available,” one member said. “It could be a walking stick or a walker or someone asking if you need some groceries. Taking that help doesn’t mean you have failed at being independent. It means you are giving yourself a break.”

If maintaining independence is important to you, it’s a good idea to learn about home support for MS. Here are some resources for independent living and MS home care.

2. Transportation Services

People with MS may begin to worry about driving, due to either physical disability or cognitive impairments (problems with thinking and memory).

One member shared, “My mom is concerned about my reaction time. She never lets me drive. But the Department of Rehabilitation will adapt your vehicle if necessary, so all the controls are on the steering wheel if needed.”

Finding alternative transportation resources can also help you stay independent. The Eldercare Locator is part of the U.S. Administration for Community Living, which assists older adults and their loved ones.

You can call 800-677-1116 to speak with a mobility manager who will help you find transportation services in your area. The locator’s helpline is open on weekdays from 9 a.m. to 8 p.m. Eastern time.

Examples of the types of resources you may find include:

• Paratransit — Offers door-to-door service that coincides with fixed public transportation routes
• Volunteer driver programs — Provide transportation for doctor appointments, shopping, and other activities
• Taxi or transportation vouchers — Reduce the cost of taxi services or other transportation for those who meet eligibility criteria

You can also ask for help signing up for a ride-sharing service, such as Uber or Lyft, or navigating your community’s public transportation system.

4. Caregivers

Hiring a caregiver can help you maintain your independence and stay at home longer. Caregivers may assist with personal care like toileting and bathing, as well as help with homemaker tasks like cooking and cleaning. You can hire a home care provider directly or use an agency to find the right fit.

Sometimes, private health insurance companies help with payment. Other times, government programs like Medicaid or Medicare will cover some of the costs. Ask your healthcare professional to refer you to a social worker who can guide you through the process and evaluate your options.

MS-focused nonprofits may also be a starting point for vetted information about in-home care providers, respite care, and caregiver support programs.

6. Service Dogs

Some people with MS choose to get a service dog for practical help and companionship. Under the Americans With Disabilities Act (ADA), a service animal is a dog that is trained to do work or tasks for a person with a disability.

The nonprofit Assistance Dogs International can help you search for accredited service dog programs. A service dog may help you by:

• Assisting with balance and ambulation
• Barking to call for help in an emergency
• Closing and opening doors
• Pulling your wheelchair
• Retrieving an item that’s out of reach
• Turning lights on or off

“I trained my own stability-mobility dog for on the ranch and in public,” one member said. “Having her help me stabilize on uneven ground, walking out to the barn, and going up steps and ramps is becoming a must. She also helps me get up off the couch or out of a chair if needed.”

The ADA doesn’t require service dogs to be professionally trained, and people with disabilities have the right to train the dog themselves. The ADA also doesn’t require service animals to be certified as service animals.

Independent living with MS can be challenging, but the right plan and support can help. Everyone’s experience with MS is different, so it’s important to work with a healthcare professional to develop a plan that works for you.

Join the Conversation

On MyMSTeam, people share their experiences with multiple sclerosis, get advice, and find support from others who understand.

What resources have helped you manage MS daily care at home to maintain independence? Let others know in the comments below.