I'm interested in exchanging information with other American Indian people here who have MS.
Hello, how are you, I am not doing so well in this heat, but I'm sure you know how that is..... I am only part Indian, by my maternal grand mother, she was 1/2 Seneca. Anyway nice to meet you, enjoy the site.... For my first week on here, I was on all day, when you are on disability, there's not much else you can do. Good luck in all that you do.
Well, was diagnosed in 1986 at 17, and not many of my symptoms are physical. My Dr always says, "You amaze me". I have more cognitive difficulties, forgetting things, thinking things through, have all the dishes done at dinner at the same time. I forget entire conversations, it really sucks. If I set something down, I've lost it. When I told my neuro this he said, "Don't tell me that" I said "I am telling you that".
After I was diagnosed in maybe '89, I asked him about forgetfulness, the powers that be said "Oh, no, that has nothing to do with MS. Hmm, shows how much they knew.
I'm also on disability now, so I know what you mean. Sorry, I overlooked this email. Are you using Indian Clinics? Do you have your card?
Do you use the Indian Clinic?
Maybe, of course back then Indians ate more of what the great father provided, which is why they can heal so well.
Anyway, I first exhibited symptoms around the age of 12, muscle spasms, clumsiness and forgetfulness, that was in '80-'81.